作者
Ségolène Aymé, Detlef Bockenhauer, Simon Day, Olivier Devuyst, Lisa M Guay-Woodford, Julie R Ingelfinger, Jon B Klein, Nine VAM Knoers, Ronald D Perrone, Julia Roberts, Franz Schaefer, Vicente E Torres, Michael Cheung, David C Wheeler, Wolfgang C Winkelmayer, Aris Angelis, Corinne Antignac, Kyongtae Bae, Carsten Bergmann, Anthony J Bleyer, Marjolein Bos, Klemens Budde, Katherine Bull, Dominique Chauveau, Avital Cnaan, Martina Cornel, Etienne Cosyns, Jane de la Fosse, Jie Ding, Susie Gear, Timothy HJ Goodship, Paul Goodyer, Oliver Gross, Nicole Harr, Peter C Harris, Tess Harris, Julia Höfele, Marie C Hogan, Ewout Hoorn, Shigeo Horie, Clifford E Kashtan, Larissa Kerecuk, Robert Kleta, Martin Konrad, Craig B Langman, Segundo Mariz, Gayle McKerracher, Annet Nieuwenhoven, Dwight Odland, Eric Olinger, Alberto Ortiz, York Pei, Yves Pirson, Brian L Rayner, Giuseppe Remuzzi, Daniel Renault, Rémi Salomon, Aude Servais, Richard J Smith, Neveen A Soliman, Bénédicte Stengel, Marjolein Storm, Roser Torra, William van't Hoff, Rosa Vargas-Poussou, Elizabeth Vroom, Christoph Wanner, Hui-Kim Yap
发表日期
2017/10/1
期刊
Kidney international
卷号
92
期号
4
页码范围
796-808
出版商
Elsevier
简介
Rare kidney diseases encompass at least 150 different conditions, most of which are inherited. Although individual rare kidney diseases raise specific issues, as a group these rare diseases can have overlapping challenges in diagnosis and treatment. These challenges include small numbers of affected patients, unidentified causes of disease, lack of biomarkers for monitoring disease progression, and need for complex care. To address common clinical and patient issues among rare kidney diseases, the KDIGO Controversies Conference entitled, Common Elements in Rare Kidney Diseases, brought together a panel of multidisciplinary clinical providers and patient advocates to address five central issues for rare kidney diseases. These issues encompassed diagnostic challenges, management of kidney functional decline and progression of chronic kidney disease, challenges in clinical study design, translation …
学术搜索中的文章
S Aymé, D Bockenhauer, S Day, O Devuyst… - Kidney international, 2017