作者
Bastian Greshake Tzovaras, Misha Angrist, Kevin Arvai, Mairi Dulaney, Vero Estrada-Galiñanes, Beau Gunderson, Tim Head, Dana Lewis, Oded Nov, Orit Shaer, Athina Tzovara, Jason Bobe, Mad Price Ball
发表日期
2019/6
来源
GigaScience
卷号
8
期号
6
页码范围
giz076
出版商
Oxford University Press
简介
Background
Many aspects of our lives are now digitized and connected to the internet. As a result, individuals are now creating and collecting more personal data than ever before. This offers an unprecedented chance for human-participant research ranging from the social sciences to precision medicine. With this potential wealth of data comes practical problems (e.g., how to merge data streams from various sources), as well as ethical problems (e.g., how best to balance risks and benefits when enabling personal data sharing by individuals).
Results
To begin to address these problems in real time, we present Open Humans, a community-based platform that enables personal data collections across data streams, giving individuals more personal data access and control of sharing authorizations, and enabling academic research as well as patient-led projects. We showcase …
学术搜索中的文章
B Greshake Tzovaras, M Angrist, K Arvai, M Dulaney… - GigaScience, 2019