作者
Andrea Anampa-Guzmán, Janet Freeman-Daily, Michael Fisch, Emil Lou, Nathan A Pennell, Corrie A Painter, Dorinda Sparacio, Mark A Lewis, Maimah Karmo, Patricia F Anderson, Stephanie L Graff, Collaboration for Outcomes using Social Media in Oncology
发表日期
2022/8
来源
JCO oncology practice
卷号
18
期号
8
页码范围
578-583
出版商
Wolters Kluwer Health
简介
PURPOSE
Patients who have cancer have leveraged the Internet to gain a better understanding of their disease and connect across geographic boundaries with others facing the same challenges. Online cancer communities have developed into resources that highlight new research and evolving care pathways. Combined with increasing health literacy and social media, they have enabled some patients to become experts in their cancer. This combination of empowerment and expertise describes the new “e-patients.”
METHODS
We reviewed the literature to identify key areas where expert e-patients have directly participated in advancing cancer medicine, as well as opportunities available to those who wish to become more involved in research advocacy.
RESULTS
E-patients are widely acknowledged as key stakeholders in oncology by clinicians, researchers, cancer centers, government agencies, and nonprofits …
学术搜索中的文章
A Anampa-Guzmán, J Freeman-Daily, M Fisch, E Lou… - JCO oncology practice, 2022
