Beyond consent: building trusting relationships with diverse populations in precision medicine research SA Kraft, MK Cho, K Gillespie, M Halley, N Varsava, KE Ormond, HS Luft, ... The American Journal of Bioethics 18 (4), 3-20, 2018 | 205 | 2018 |
The evolving landscape of expanded carrier screening: challenges and opportunities SA Kraft, D Duenas, BS Wilfond, KAB Goddard Genetics in Medicine 21 (4), 790-797, 2019 | 131 | 2019 |
Attitudes toward risk and informed consent for research on medical practices: a cross-sectional survey MK Cho, D Magnus, M Constantine, SSJ Lee, M Kelley, S Alessi, ... Annals of internal medicine 162 (10), 690-696, 2015 | 113 | 2015 |
Noninvasive prenatal genetic testing: current and emerging ethical, legal, and social issues MA Minear, S Alessi, M Allyse, M Michie, S Chandrasekharan Annual review of genomics and human genetics 16, 369-398, 2015 | 105 | 2015 |
Patient perspectives on the learning health system: the importance of trust and shared decision making M Kelley, C James, S Alessi Kraft, D Korngiebel, I Wijangco, E Rosenthal, ... The american journal of bioethics 15 (9), 4-17, 2015 | 90 | 2015 |
“I don’t want to be Henrietta Lacks”: diverse patient perspectives on donating biospecimens for precision medicine research SSJ Lee, MK Cho, SA Kraft, N Varsava, K Gillespie, KE Ormond, ... Genetics in medicine 21 (1), 107-113, 2019 | 86 | 2019 |
A randomized study of multimedia informational aids for research on medical practices: Implications for informed consent SA Kraft, M Constantine, D Magnus, KM Porter, SSJ Lee, M Green, ... Clinical Trials 14 (1), 94-102, 2017 | 82 | 2017 |
Exploring ethical concerns about human challenge studies: a qualitative study of controlled human malaria infection study participants’ motivations and attitudes SA Kraft, DM Duenas, JG Kublin, KJ Shipman, SC Murphy, SK Shah Journal of Empirical Research on Human Research Ethics 14 (1), 49-60, 2019 | 49 | 2019 |
Clarifying costs: Can increased price transparency reduce healthcare spending MA Muir, SA Alessi, JS King Wm. & Mary Pol'y Rev. 4, 319, 2012 | 43 | 2012 |
A comparison of institutional review board professionals’ and patients’ views on consent for research on medical practices SA Kraft, MK Cho, M Constantine, SSJ Lee, M Kelley, D Korngiebel, ... Clinical Trials 13 (5), 555-565, 2016 | 42 | 2016 |
Adrift in the gray zone: IRB perspectives on research in the learning health system SSJ Lee, M Kelley, MK Cho, SA Kraft, C James, M Constantine, AN Meyer, ... AJOB empirical bioethics 7 (2), 125-134, 2016 | 42 | 2016 |
“I think we’ve got too many tests!”: prenatal providers’ reflections on ethical and clinical challenges in the practice integration of cell-free DNA screening BL Gammon, SA Kraft, M Michie, M Allyse Ethics, Medicine and Public Health 2 (3), 334-342, 2016 | 40 | 2016 |
Engaging populations underrepresented in research through novel approaches to consent SA Kraft, M Doerr American Journal of Medical Genetics Part C: Seminars in Medical Genetics …, 2018 | 37 | 2018 |
Examining access to care in clinical genomic research and medicine: experiences from the CSER Consortium AM Gutierrez, JO Robinson, SM Outram, HS Smith, SA Kraft, KE Donohue, ... Journal of clinical and translational science 5 (1), e193, 2021 | 28 | 2021 |
Perceived utility of genomic sequencing: qualitative analysis and synthesis of a conceptual model to inform patient-centered instrument development HS Smith, SR Morain, JO Robinson, I Canfield, J Malek, CK Rubanovich, ... The Patient-Patient-Centered Outcomes Research, 1-12, 2022 | 27 | 2022 |
Cancer Health Assessments Reaching Many (CHARM): a clinical trial assessing a multimodal cancer genetics services delivery program and its impact on diverse populations KF Mittendorf, TL Kauffman, LM Amendola, KP Anderson, BB Biesecker, ... Contemporary clinical trials 106, 106432, 2021 | 27 | 2021 |
Patient perspectives on the use of categories of conditions for decision making about genomic carrier screening results SA Kraft, CK McMullen, KM Porter, TL Kauffman, JV Davis, JL Schneider, ... American journal of medical genetics Part A 176 (2), 376-385, 2018 | 26 | 2018 |
Demonstrating ‘respect for persons’ in clinical research: findings from qualitative interviews with diverse genomics research participants SA Kraft, E Rothwell, SK Shah, DM Duenas, H Lewis, K Muessig, DJ Opel, ... Journal of medical ethics 47 (12), e8-e8, 2021 | 25 | 2021 |
Informed consent: Old and new challenges in the context of the COVID-19 pandemic E Rothwell, D Brassil, M Barton-Baxter, KA Brownley, NW Dickert, ... Journal of Clinical and Translational Science 5 (1), e105, 2021 | 25 | 2021 |
Patient actions and reactions after receiving negative results from expanded carrier screening SA Kraft, JL Schneider, MC Leo, TL Kauffman, JV Davis, KM Porter, ... Clinical genetics 93 (5), 962-971, 2018 | 25 | 2018 |