| Detecting Parkinson disease using a web-based speech task: Observational study W Rahman, S Lee, MS Islam, VN Antony, H Ratnu, MR Ali, AA Mamun, ... Journal of Medical Internet Research 23 (10), e26305, 2021 | 31 | 2021 |
| Patient-Reported Impact of Symptoms in Crohn's Disease A Varma, J Weinstein, J Seabury, S Rosero, E Wagner, C Zizzi, E Luebbe, ... The American Journal of Gastroenterology 117 (12), 2033, 2022 | 12 | 2022 |
| Patient reported impact of symptoms in amyotrophic lateral sclerosis (PRISM-ALS): A national, cross-sectional study C Zizzi, J Seabury, S Rosero, D Alexandrou, E Wagner, JS Weinstein, ... eClinicalMedicine 55, 101768, 2023 | 10 | 2023 |
| GEORGE®: A Pilot Study of a Smartphone Application for Huntington’s Disease EM Waddell, K Dinesh, KL Spear, MJ Elson, E Wagner, MJ Curtis, ... Journal of Huntington's Disease 10 (2), 293-301, 2021 | 9 | 2021 |
| Patient-Reported Impact of Symptoms in Friedreich Ataxia J Seabury, D Alexandrou, N Dilek, B Cohen, J Heatwole, J Larkindale, ... Neurology 100 (8), e808-e821, 2023 | 7 | 2023 |
| The Identification of the Most Important Friedreich’s Ataxia Symptoms: Results From a Patient and Caregiver Study C Zizzi, E Wagner, B Greco, MJ Larkindale, L Corben, SH Subramony, ... International Ataxia Research Conference, 14-16, 2019 | 3 | 2019 |
| Can Social Media Data Predict Survey Data? A Meta-Analytic Review of the Literature L Guggenheim, J Pasek, C Lampe, MF Schober, FG Conrad, E Wagner, ... Annual Conference of the American Association for Public Opinion Research …, 2014 | 3 | 2014 |
| The Facioscapulohumeral Muscular Dystrophy-Health Index: Development and evaluation of a disease-specific outcome measure. A Varma, J Weinstein, J Seabury, S Rosero, C Engebrecht, E Wagner, ... Muscle & Nerve, 2023 | 2 | 2023 |
| Disease Burden in Children With Spinal Muscular Atrophy: Results From a Large Cross-Sectional Study S Rosero, J Weinstein, J Seabury, C Zizzi, E Wagner, A Varma, ... Journal of Child Neurology 38 (1-2), 52-63, 2023 | 2 | 2023 |
| Friedreich's Ataxia-Health Index: Development and Validation of a Novel Disease-Specific Patient-Reported Outcome Measure J Seabury, S Rosero, A Varma, J Weinstein, C Engebrecht, N Dilek, ... Neurology: Clinical Practice 13 (5), 2023 | 1 | 2023 |
| Friedreich Ataxia Caregiver-Reported Health Index: Development of a Novel, Disease-Specific Caregiver-Reported Outcome Measure J Seabury, A Varma, J Weinstein, SJ Rosero, C Engebrecht, S Khosa, ... Neurology: Clinical Practice 14 (3), e200303, 2024 | | 2024 |
| A User-Centered Framework to Empower People with Parkinson's Disease W Rahman, A Abdelkader, S Lee, P Yang, MS Islam, T Adnan, M Hasan, ... Proceedings of the ACM on Interactive, Mobile, Wearable and Ubiquitous …, 2024 | | 2024 |
| The Crohn’s Disease–Health Index: Development and Evaluation of a Novel Outcome Measure A Varma, J Weinstein, J Seabury, S Rosero, E Wagner, C Zizzi, A Kaat, ... Journal of Clinical Gastroenterology, 10.1097, 2024 | | 2024 |
| Medication-Related Experience of Deaf American Sign Language Users M Paracha, E Wagner, O Brumfield, J Winninghoff, J Wright, J Rotoli, ... HLRP: Health Literacy Research and Practice 7 (4), e215-e224, 2023 | | 2023 |
| The amyotrophic lateral sclerosis-health index (ALS-HI): development and evaluation of a novel outcome measure A Varma, J Weinstein, J Seabury, S Rosero, C Zizzi, D Alexandrou, ... Amyotrophic Lateral Sclerosis and Frontotemporal Degeneration, 1-9, 2023 | | 2023 |
| DEVELOPMENT AND VALIDATION OF A PATIENT-REPORTED OUTCOME MEASURE FOR CROHN’S DISEASE: THE CROHN’S DISEASE-HEALTH INDEX (CD-HI), A FULLY VALIDATED TOOL TO BOLSTER CLINICAL TRIAL … S Rosero, A Varma, J Seabury, J Weinstein, E Wagner, C Zizzi, ... Inflammatory Bowel Diseases 29 (Supplement_1), S74-S75, 2023 | | 2023 |
| The Amyotrophic Lateral Sclerosis-Health Index (ALS-HI): A Novel Outcome for Measuring How Patients with ALS Feel and Function During Clinical Trials J Weinstein, J Seabury, S Rosero, A Varma, C Zizzi, E Wagner, ... MUSCLE & NERVE 66, S38-S38, 2022 | | 2022 |
| GEORGE (R) Huntington's Disease App: Usability Assessment and Design Implications E Wagner, E Waddell, E Dorsey, JL Adams ANNALS OF NEUROLOGY 92, S115-S115, 2022 | | 2022 |
| JourneyMap: A visual resource to reduce coordinator burden during virtual study visits E Wagner, K Li MOVEMENT DISORDERS 37, S514-S514, 2022 | | 2022 |
| A user experience evaluation of a Huntington's disease app: Implications for mobile-first design E Wagner, E Waddell, E Dorsey, J Adams MOVEMENT DISORDERS 37, S207-S208, 2022 | | 2022 |
