受强制性开放获取政策约束的文章 - Martha Driessnack了解详情
无法在其他位置公开访问的文章:1 篇
Disclosure of incidental genomic findings involving children: are we making progress?
JK Williams, M Driessnack, S Daack-Hirsch, N Downing, C Simon
Personalized Medicine 10 (6), 519-521, 2013
强制性开放获取政策: US National Institutes of Health
可在其他位置公开访问的文章:18 篇
‘Information is information’: a public perspective on incidental findings in clinical and research genome‐based testing
S Daack‐Hirsch, M Driessnack, A Hanish, VA Johnson, LL Shah, ...
Clinical genetics 84 (1), 11-18, 2013
强制性开放获取政策: US National Institutes of Health
Genetics specialists’ perspectives on disclosure of genomic incidental findings in the clinical setting
NR Downing, JK Williams, S Daack-Hirsch, M Driessnack, CM Simon
Patient Education and Counseling 90 (1), 133-138, 2013
强制性开放获取政策: US National Institutes of Health
Experiences of teens living in the shadow of Huntington disease
KJH Sparbel, M Driessnack, JK Williams, DL Schutte, T Tripp-Reimer, ...
Journal of Genetic Counseling 17, 327-335, 2008
强制性开放获取政策: US National Institutes of Health
Informed consent and genomic incidental findings: IRB chair perspectives
CM Simon, JK Williams, L Shinkunas, D Brandt, S Daack-Hirsch, ...
Journal of Empirical Research on Human Research Ethics 6 (4), 53-67, 2011
强制性开放获取政策: US National Institutes of Health
A closer look at the recommended criteria for disclosing genetic results: perspectives of medical genetic specialists, genomic researchers, and institutional review board chairs
DS Brandt, L Shinkunas, SL Hillis, SE Daack-Hirsch, M Driessnack, ...
Journal of genetic counseling 22, 544-553, 2013
强制性开放获取政策: US National Institutes of Health
Researcher and institutional review board chair perspectives on incidental findings in genomic research
JK Williams, S Daack-Hirsch, M Driessnack, N Downing, L Shinkunas, ...
Genetic Testing and Molecular Biomarkers 16 (6), 508-513, 2012
强制性开放获取政策: US National Institutes of Health
The disclosure of incidental genomic findings: an “ethically important moment” in pediatric research and practice
M Driessnack, S Daack-Hirsch, N Downing, A Hanish, LL Shah, ...
Journal of Community Genetics 4, 435-444, 2013
强制性开放获取政策: US National Institutes of Health
Assessment of the information sources and interest in research collaboration among individuals with vascular Ehlers-Danlos syndrome
S Shalhub, L Sage, J Demasi, SE Wallace, DS Fulton, L Bloom, ...
Annals of Vascular Surgery 62, 326-334, 2020
强制性开放获取政策: Patient-Centered Outcomes Research Institute
Strategies used by teens growing up in families with Huntington disease
JK Williams, M Driessnack, JJ Barnette, KJH Sparbel, A Leserman, ...
Journal of pediatric nursing 28 (5), 464-469, 2013
强制性开放获取政策: US National Institutes of Health, Howard Hughes Medical Institute
Parents’ experiences telling children conceived by gamete and embryo donation about their genetic origins
PE Hershberger, AM Gallo, K Adlam, M Driessnack, HD Grotevant, ...
F&S Reports 2 (4), 479-486, 2021
强制性开放获取政策: US National Institutes of Health
Development of the HD-teen inventory
M Driessnack, JK Williams, JJ Barnette, KJ Sparbel, JS Paulsen
Clinical nursing research 21 (2), 213-223, 2012
强制性开放获取政策: US National Institutes of Health, Howard Hughes Medical Institute
Emerging frontline leaders’ voices in response to COVID-19 crisis
AA Taha, Z Zhang, M Driessnack, JJ Huntzicker, AM Eisen, J Bernstein, ...
Nursing research 71 (2), 104-110, 2022
强制性开放获取政策: US National Institutes of Health
Alpha test of the donor conception tool to empower parental telling and talking
PE Hershberger, AM Gallo, K Adlam, AD Steffen, M Driessnack, ...
Journal of Obstetric, Gynecologic & Neonatal Nursing 51 (5), 536-547, 2022
强制性开放获取政策: US National Institutes of Health
Development of the Tool to Empower Parental Telling and Talking (TELL Tool): A digital decision aid intervention about children's origins from donated gametes or embryos
PE Hershberger, AM Gallo, K Adlam, M Driessnack, HD Grotevant, ...
Digital health 9, 20552076231194934, 2023
强制性开放获取政策: US National Institutes of Health
Using poetry as data to explore daily and formal care decision making within African American dementia dyads
KB Johnson, FR Epps, MK Song, KS Lyons, M Driessnack
Geriatric Nursing 42 (4), 919-925, 2021
强制性开放获取政策: US National Institutes of Health
The importance of patient engagement
JK Williams, S Daack-Hirsch, M Driessnack, NR Downing, C Simon
Genet Test Mol Biomarkers 17, 649, 2013
强制性开放获取政策: US National Institutes of Health
UNDERSTANDING PARENTS EMOTIONS SURROUNDING DISCLOSURE TO THEIR DONOR-CONCEIVED CHILDREN DURING PARTICIPATION IN THE TELL TOOL INTERVENTION
K Adlam, AM Gallo, V Gruss, A Steffen, M Driessnack, HD Grotevant, ...
Fertility and Sterility 120 (4), e264, 2023
强制性开放获取政策: US National Institutes of Health
A FIRST LOOK AT PARENTS SEQUENTIAL DECISIONS WHEN CO-CREATING A TELLING PLAN TO INFORM THEIR DONOR CONCEIVED CHILDREN ABOUT THEIR BIRTH ORIGINS: RESULTS FROM THE TELL TOOL …
P Hershberger, AM Gallo, K Adlam, A Steffen, R Bhagat, M Driessnack, ...
Fertility and Sterility 120 (4), e18, 2023
强制性开放获取政策: US National Institutes of Health
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