Life impact and treatment preferences of individuals with asthma and chronic obstructive pulmonary disease: results from qualitative interviews and focus groups H Svedsater, J Roberts, C Patel, J Macey, E Hilton, L Bradshaw Advances in therapy 34, 1466-1481, 2017 | 72 | 2017 |
The Alopecia Areata Investigator’s Global Assessment (AA‐IGA™) Scale: A Measure for Evaluating Clinically Meaningful Success in Clinical Trials KW Wyrwich, H Kitchen, S Knight, NVJ Aldhouse, J Macey, FP Nunes, ... British Journal of Dermatology, 2019 | 71 | 2019 |
The Alopecia Areata Investigator's Global Assessment (AA-IGA) scale: A measure for evaluating clinically meaningful success in clinical trials: 8606 K Wyrwich, H Kitchen, S Knight, N Aldhouse, J Macey, F Nunes, ... Journal of the American Academy of Dermatology 81 (4), AB283, 2019 | 71* | 2019 |
“‘You lose your hair, what’s the big deal?’ I was so embarrassed, I was so self-conscious, I was so depressed:” a qualitative interview study to understand the … NVJ Aldhouse, H Kitchen, S Knight, J Macey, FP Nunes, Y Dutronc, ... Journal of Patient-Reported Outcomes 4 (1), 76, 2020 | 69 | 2020 |
Development of clinician-reported outcome (ClinRO) and patient-reported outcome (PRO) measures for eyebrow, eyelash and nail assessment in alopecia areata KW Wyrwich, H Kitchen, S Knight, NVJ Aldhouse, J Macey, FP Nunes, ... American journal of clinical dermatology 21 (5), 725-732, 2020 | 50 | 2020 |
Development of the Scalp Hair Assessment PRO™ measure for alopecia areata KW Wyrwich, H Kitchen, S Knight, NVJ Aldhouse, J Macey, FP Nunes, ... British Journal of Dermatology 183 (6), 1065-1072, 2020 | 31 | 2020 |
Measurement of utilities associated with parenteral support requirement in patients with short bowel syndrome and intestinal failure R Ballinger, J Macey, A Lloyd, J Brazier, J Ablett, S Burden, S Lal Clinical Therapeutics 40 (11), 1878-1893. e1, 2018 | 13 | 2018 |
Dermatologist and patient perceptions of treatment success in alopecia areata and evaluation of clinical outcome assessments in Japan J Macey, H Kitchen, NVJ Aldhouse, RT Burge, E Edson-Heredia, ... Dermatology and Therapy 11, 433-447, 2021 | 11 | 2021 |
A qualitative interview study to explore adolescents’ experience of alopecia areata and the content validity of sign/symptom patient‐reported outcome measures J Macey, H Kitchen, NVJ Aldhouse, E Edson‐Heredia, R Burge, ... British Journal of Dermatology 186 (5), 849-860, 2022 | 5 | 2022 |
The role of patients in alopecia areata endpoint development: understanding physical signs and symptoms KW Wyrwich, H Kitchen, S Knight, NVJ Aldhouse, J Macey, F Nunes, ... Journal of Investigative Dermatology Symposium Proceedings 20 (1), S71-S77, 2020 | 5 | 2020 |
The challenges of living with and caring for a child or children affected by neuronal ceroid lipofuscinosis type 2 disease: In-Depth family surveys in the United Kingdom and … A Schulz, M Jain, T Butt, R Ballinger, L Eliasson, J Macey, T Peasgood, ... Journal of Inborn Errors of Metabolism and Screening 8, e20190013, 2020 | 5 | 2020 |
Using qualitative methods to establish the clinically meaningful threshold for treatment success in alopecia areata KW Wyrwich, H Kitchen, S Knight, NVJ Aldhouse, J Macey, ... Quality of Life Research 32 (5), 1319-1327, 2023 | 4 | 2023 |
Treatment preferences of patients with chronic obstructive pulmonary disease: results from qualitative interviews and focus groups in the United Kingdom, United States, and Germany M Schroeder, K Hall, L Eliasson, S Bracey, NB Gunsoy, J Macey, ... Chronic Obstructive Pulmonary Diseases: Journal of the COPD Foundation 8 (1), 19, 2021 | 4 | 2021 |
Development of the OIQoL-A: a health-related quality of life measure for adults with osteogenisis imperfecta O Moshkovich, K Benjamin, J Macey, HA Doll, CL Hill, AK Hall Value in Health 20 (9), A538, 2017 | 3 | 2017 |
Experience and impact of stigma in people with chronic hepatitis B: a qualitative study in Asia, Europe, and the United States M Toumi, J Wallace, C Cohen, C Marshall, H Kitchen, J Macey, H Pegram, ... BMC Public Health 24 (1), 611, 2024 | 2 | 2024 |
Qualitative interviews and focus groups with COPD and asthma patients: understanding patient burden, life impact and treatment preferences H Svedsater, E Hilton, C Patel, J Macey, J Roberts, L Bradshaw A50. ASTHMA: OBSERVATIONAL STUDIES, A1747-A1747, 2016 | 2 | 2016 |
PSAT097 patient preference research: preferred adjunctive medication attributes of adult patients with classic congenital adrenal hyperplasia R Manahan, J Macey, M Farrar, C O’Donoghue, S Knight, C Carmichael, ... Journal of the Endocrine Society 6 (Supplement_1), A118-A118, 2022 | 1 | 2022 |
Ethical considerations when accessing, analyzing, and reporting social media data C Johnson, H Kitchen, C Marshall, J Macey, NVJ Aldhouse, T Al-Zubeidi, ... QUALITY OF LIFE RESEARCH 29 (SUPPL 1), S135-S135, 2020 | 1 | 2020 |
PIH65 Impact On Carers Of Paediatric Patients Receiving Parenteral Support For Short Bowel Syndrome-Associated Intestinal Failure R Ballinger, J Macey, A Lloyd, K Chen Value in Health 22, S639, 2019 | 1 | 2019 |
PAM13 IMPACT ON CARERS OF ADULT PATIENTS RECEIVING PARENTERAL SUPPORT FOR SHORT BOWEL SYNDROME-ASSOCIATED INTESTINAL FAILURE R Ballinger, J Macey, A Lloyd, K Chen Value in Health 22, S417, 2019 | 1 | 2019 |