GA4GH: International policies and standards for data sharing across genomic research and healthcare
Summary The Global Alliance for Genomics and Health (GA4GH) aims to accelerate
biomedical advances by enabling the responsible sharing of clinical and genomic data …
biomedical advances by enabling the responsible sharing of clinical and genomic data …
Facilitating a culture of responsible and effective sharing of cancer genome data
Rapid and affordable tumor molecular profiling has led to an explosion of clinical and
genomic data poised to enhance the diagnosis, prognostication and treatment of cancer. A …
genomic data poised to enhance the diagnosis, prognostication and treatment of cancer. A …
A human rights approach to an international code of conduct for genomic and clinical data sharing
Fostering data sharing is a scientific and ethical imperative. Health gains can be achieved
more comprehensively and quickly by combining large, information-rich datasets from …
more comprehensively and quickly by combining large, information-rich datasets from …
[HTML][HTML] Integrating genomics into healthcare: a global responsibility
Genomic sequencing is rapidly transitioning into clinical practice, and implementation into
healthcare systems has been supported by substantial government investment, totaling over …
healthcare systems has been supported by substantial government investment, totaling over …
Including all voices in international data-sharing governance
Background Governments, funding bodies, institutions, and publishers have developed a
number of strategies to encourage researchers to facilitate access to datasets. The rationale …
number of strategies to encourage researchers to facilitate access to datasets. The rationale …
Genomics in healthcare: GA4GH looks to 2022
E Birney, J Vamathevan, P Goodhand - BioRxiv, 2017 - biorxiv.org
Abstract The Global Alliance for Genomics and Health (GA4GH), the standards-setting body
in genomics for healthcare, aims to accelerate biomedical advancement globally. We …
in genomics for healthcare, aims to accelerate biomedical advancement globally. We …
Towards a data sharing Code of Conduct for international genomic research
BM Knoppers, JR Harris, AM Tassé, I Budin-Ljøsne… - Genome medicine, 2011 - Springer
Data sharing is increasingly regarded as an ethical and scientific imperative that advances
knowledge and thereby respects the contributions of the participants. Because of this and …
knowledge and thereby respects the contributions of the participants. Because of this and …
Inverting the model of genomics data sharing with the NHGRI Genomic Data Science Analysis, Visualization, and Informatics Lab-space
Summary The NHGRI Genomic Data Science Analysis, Visualization, and Informatics Lab-
space (AnVIL; https://anvilproject. org) was developed to address a widespread community …
space (AnVIL; https://anvilproject. org) was developed to address a widespread community …
Leveraging European infrastructures to access 1 million human genomes by 2022
Human genomics is undergoing a step change from being a predominantly research-driven
activity to one driven through health care as many countries in Europe now have nascent …
activity to one driven through health care as many countries in Europe now have nascent …
Uniform genomic data analysis in the NCI Genomic Data Commons
The goal of the National Cancer Institute's (NCI's) Genomic Data Commons (GDC) is to
provide the cancer research community with a data repository of uniformly processed …
provide the cancer research community with a data repository of uniformly processed …