Fostering ethical reflection on health data research through co-design: A pilot study

J Sleigh, J Amann - International Journal of Ethics Education, 2022 - Springer
Health research ethics training is highly variable, with some researchers receiving little to
none, which is why ethical frameworks represent critical tools for ethical deliberation and …

Ethical preparedness in health research and care: the role of behavioural approaches

G Samuel, LM Ballard, H Carley, AM Lucassen - BMC Medical Ethics, 2022 - Springer
Background Public health scholars have long called for preparedness to help better
negotiate ethical issues that emerge during public health emergencies. In this paper we …

What ethical approaches are used by scientists when sharing health data? An interview study

J Viberg Johansson, HB Bentzen, D Mascalzoni - BMC Medical Ethics, 2022 - Springer
Background Health data-driven activities have become central in diverse fields (research, AI
development, wearables, etc.), and new ethical challenges have arisen with regards to …

[HTML][HTML] A network of empirical ethics teams embedded in research programmes across multiple sites: opportunities and challenges in contributing to COVID-19 …

N Ngwenya, JI Van Nuil, D Nyirenda… - Wellcome open …, 2022 - ncbi.nlm.nih.gov
Covid-19 continues to teach the global community important lessons about preparedness for
research and effective action to respond to emerging health threats. We share the COVID-19 …

The Ethical implications of big data research in public health:“big data ethics by design” in the UK‐REACH Study

R Reed‐Berendt, ES Dove, M Pareek… - Ethics & human …, 2022 - Wiley Online Library
In this article, we analyze legal and ethical issues raised in Big Data health research
projects in the Covid‐19 era and consider how these issues might be addressed in ways …

The narrative approach as a learning strategy in the formation of novice researchers

M Guillemin, K Heggen - Qualitative Health Research, 2012 - journals.sagepub.com
Novice researchers must be trained to be ethical practitioners. This means more than just
knowing how to gain ethics approval and being familiar with the codes of ethics. Rather …

Ethics of Participatory Health Research: Insights from a reflective journey

BC Groot-Sluijsmans - 2021 - research.vu.nl
Abstract Participatory Health Research (PHR) continues to grow in popularity, based on the
normative idea that people, whose life or work is the subject of research, have the right to …

How Interactive Visualizations Compare to Ethical Frameworks as Stand-Alone Ethics Learning Tools for Health Researchers and Professionals

J Sleigh, K Ormond, M Schneider, E Stern… - AJOB Empirical …, 2023 - Taylor & Francis
Background Despite the bourgeoning of digital tools for bioethics research, education, and
engagement, little research has empirically investigated the impact of interactive …

The ethics of citizen science in biomedicine

L Del Savio, A Buyx, B Prainsack - Das Gesundheitswesen, 2015 - thieme-connect.com
Background: Research in biomedicine and healthcare increasingly includes participatory
initiatives and harnesses direct contributions from lay citizens in terms of data, samples …

Stakeholder-driven, consensus development methods to design an ethical framework and guidelines for engaged research

G Corbie-Smith, M Wynn, A Richmond, S Rennie… - PLoS …, 2018 - journals.plos.org
Increasingly, researchers seek to engage communities, patients, and stakeholders as
partners in the process and products of health research. However, there is no existing …