Sharing individual-level data from clinical and public health research is increasingly being
seen as a core requirement for effective and efficient biomedical research. This article …

Background In this article, we address questions regarding how people consider what they
do or do not consent to and the reasons why. This article presents the findings of a citizen …

Health researchers conducting research in the community are often faced with unanticipated
ethical issues that arise in the course of their research and that go beyond the scope of …

The research ethics review systems within universities evolved from the positivist biomedical
model but have expanded to include all non-clinical research involving human subjects …

In her article, Lee (2021) vouches for a reciprocitybased approach that supports an ethics of
inclusion in precision medicine research and accounts for participants' values and …

The ethical conduct of research includes, in part, patient agreement to participate in studies
and the protection of health information. In the evolving world of data science and the …

BackgroundIn this article, we address questions regarding how people consider what they
do or do not consent to and the reasons why. This article presents the findings of a citizen …

The COVID-19 pandemic has resulted in the generation of an unprecedented and
exponentially mounting volume of data, including individual-level health data, bringing into …

Background Large-scale linkage of international clinical datasets could lead to unique
insights into disease aetiology and facilitate treatment evaluation and drug development …

Ethical review systems need to build on their experiences of COVID-19 research to enhance
their preparedness for future pandemics. Recommendations from representatives from over …