More than thirty years ago in the United States, the National Center for Human Genome
Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human …

For more than 20 years, the Ethical, Legal, and Social Implications (ELSI) Program of the
National Human Genome Research Institute has supported empirical and conceptual …

Organizers of the Human Genome Project (HGP) understood from the beginning that the
scientific activities of mapping and sequencing the human genome would raise ethical …

The Human Genome Project (HGP) is often described as the first large-scale scientific
project to incorporate investigation of its own ethical and social dimensions into the “core” …

Research on the ethical, legal, and social implications (ELSI) of human genomics has
devoted significant attention to the research ethics issues that arise from genomic science as …

While bioethics as a field has concerned itself with methodological issues since the early
years, there has been no systematic examination of how ethics is incorporated into research …

ELSI is not a guarantee that all is well in the Genome Project, that all moral problems will be
neatly anticipated, dissected, and managed. It is ludicrous to think that a handful of scholars …

Federally funded research on the ethical, legal, and social implications (ELSI) of genomics
includes a programmatic charge to consider policy-relevant questions and to communicate …

The first National Commission for the Protection of Human Subjects of Biomedical and
Behavioral Research, for example, was established, in part, in response to the abuse of …

Anticipating and addressing the ethical, legal, and social implications (ELSI) of scientific
developments has been a key feature of the genomic research agenda (–). Research in …