Scientific limitations and ethical ramifications of a non-representative Human Genome Project: African American response

F Jackson - Science and Engineering Ethics, 1998 - Springer
Abstract The Human Genome Project (HGP) represents a massive merging of science and
technology in the name of all humanity. While the disease aspects of HGP-generated data …

From genome to brainome: charting the lessons learned

RM Green - Neuroethics: defining the issues in theory, practice …, 2006 - books.google.com
It is 15 years since the start of the Ethical Legal and Social Implications (ELSI) program of
the Human Genome Project (HGP). That program was an unprecedented effort to ensure …

Harm, hype and evidence: ELSI research and policy guidance

T Caulfield, S Chandrasekharan, Y Joly… - Genome medicine, 2013 - Springer
There has been much investment in research on the ethical, legal and social issues (ELSI)
associated with genetic and genomic research. This research should inform the …

[HTML][HTML] The human genome project

L Gannett - 2008 - seop.illc.uva.nl
The 20 th century opened with rediscoveries of Gregor Mendel's studies on patterns of
inheritance in peas and closed with a research project in molecular biology that was …

Political issues in the genome era

JM Jeffords, T Daschle - Science, 2001 - science.org
The sequencing of the human genome heralds a new age in medicine, with enormous
benefits for the general public. For example, it will allow scientists to identify all of the genes …

Research ethics 2.0: New perspectives on norms, values, and integrity in genomic research in times of even scarcer resources

C Brall, E Maeckelberghe, R Porz, J Makhoul… - Public Health …, 2017 - karger.com
Research ethics anew gained importance due to the changing scientific landscape and
increasing demands and competition in the academic field. These changes are further …

THE LEGAL RESEARCH AGENDA FOR THE HUMAN GENOME INITIATIVE

DS Karjala - jurimetrics, 1992 - JSTOR
The" Human Genome Initiative"(HGI) is the large-scale, multinational effort to map and
sequence the human genome. Completion of the Initiative is estimated to require about …

[图书][B] Justice and the human genome project

TF Murphy, M Lappé - 1994 - books.google.com
The Human Genome Project is an expensive, ambitious, and controversial attempt to locate
and map every one of the approximately 100,000 genes in the human body. If it works, and …

Research ethics in the era of personalized medicine: updating science's contract with society

EM Meslin, MK Cho - Public Health Genomics, 2010 - karger.com
With the completed sequence of the human genome has come the prospect of substantially
improving the quality of life for millions through personalized medicine approaches. Still, any …

The $1000 genome: ethical and legal issues in whole genome sequencing of individuals

JA Robertson - American Journal of Bioethics, 2003 - Taylor & Francis
Progress in gene sequencing could make rapid whole genome sequencing of individuals
affordable to millions of persons and useful for many purposes in a future era of genomic …