While bioethics as a field has concerned itself with methodological issues since the early
years, there has been no systematic examination of how ethics is incorporated into research …

Research on the ethical, legal, and social implications (ELSI) of human genomics has
devoted significant attention to the research ethics issues that arise from genomic science as …

Background: Discussion of the influence of money on bioethics research seems particularly
salient in the context of research on the ethical, legal, and social implications (ELSI) of …

The Human Genome Project (HGP) is often described as the first large-scale scientific
project to incorporate investigation of its own ethical and social dimensions into the “core” …

Two mechanisms for developing public policy in bioethics–an independent commission and
the ELSI “un-commission” of the Human Genome Project–are discussed. The author, a …

The first National Commission for the Protection of Human Subjects of Biomedical and
Behavioral Research, for example, was established, in part, in response to the abuse of …

Organizers of the Human Genome Project (HGP) understood from the beginning that the
scientific activities of mapping and sequencing the human genome would raise ethical …

More than thirty years ago in the United States, the National Center for Human Genome
Research (NCHGR) at the National Institutes of Health (NIH) and its partner in the Human …

Ethical evaluation of genomic studies is increasingly emphasized as a method to solve
ethical difficulties in research. Research ethics committees (RECs) however, have their own …

Eight years ago, the Kennedy Institute of Ethics Journal published a brief selection by Eric
Juengst (1991) entitled “The Human Genome Project and Bioethics.” That essay introduced …