Characteristics and well-being of informal caregivers: Results from a nationally-representative US survey

R Trivedi, K Beaver, ED Bouldin, E Eugenio… - Chronic …, 2014 - journals.sagepub.com
R Trivedi, K Beaver, ED Bouldin, E Eugenio, SB Zeliadt, K Nelson, AM Rosland, JG Szarka…
Chronic Illness, 2014journals.sagepub.com
Objectives Given ongoing concerns about high levels of burden reported among some
informal caregivers, the goal of this study was to characterize their sociodemographics,
health, and well-being. Methods Using cross-sectional data from a large nationally
representative survey in the United States (N= 438,712) we identified adults who provided
informal care to friends or family members with a health problem, long-term illness, or
disability. Descriptive statistics and propensity matching were used to characterize …
Objectives
Given ongoing concerns about high levels of burden reported among some informal caregivers, the goal of this study was to characterize their sociodemographics, health, and well-being.
Methods
Using cross-sectional data from a large nationally representative survey in the United States (N = 438,712) we identified adults who provided informal care to friends or family members with a health problem, long-term illness, or disability. Descriptive statistics and propensity matching were used to characterize caregivers and compare their health and social support to sociodemographically-similar adults who were not caregivers. Logistic regression models examined associations between caregiving and respondents’ mental health, general health, perceived social support, and sleep problems.
Results
A total of 111,156 (25.3%) participants reported being caregivers, most of whom reported good mental health (90%) good general health (83%), and adequate social support (77%). After adjusting for respondents’ gender, caregivers reported worse mental health than non-caregivers (odds ratio (OR) = 1.35, 95% confidence interval (CI) = 1.31–1.39 for >15 days poor mental health in the past month) but better general health (OR = 0.96, 95%CI = 0.94–0.98 for fair or poor health). Men caregivers reported somewhat worse overall health than non-caregivers (OR = 1.09, 95%CI = 1.05–1.13) whereas women reported better overall health.
Discussion
Although reporting good overall well-being, caregivers remain vulnerable for worse outcomes than non-caregivers. Caregiving is associated with poor mental health, and may have additional impacts on the physical health of caregiving men.
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