Purpose Adolescents and young adults (AYA) with sickle cell disease (SCD) and
thalassemia transitioning from pediatric to adult health care experience a lack of
engagement with adult providers and are at risk of loss to follow-up, morbidity and mortality.
The purpose of the study is to determine whether the implementation of a comprehensive
structured transition program (CSTP) with dedicated transition navigator (TN) in a pediatric
and adult hemoglobinopathy comprehensive care center will reduce loss to follow-up and …

Introduction: Adolescents and young adults (AYA) with sickle cell disease (SCD) and
thalassemia transitioning from pediatric to adult health care experience a lack of
engagement with adult care providers, are at high risk of loss to follow-up, emergence of
psychosocial issues, morbidity and mortality. The shift from a pediatric to an adult setting can
be challenging for AYA who are coping with multiple life transitions and are expected to
acquire the necessary skills to manage their own care. Hypothesis: implementation of a …