Background Improving care coordination is particularly important for individuals with rare
conditions (who may experience multiple inputs into their care, across different providers
and settings). To develop and evaluate strategies to potentially improve care coordination, it
is necessary to develop a method for organising different ways of coordinating care for rare
conditions. Developing a taxonomy would help to describe different ways of coordinating
care and in turn facilitate development and evaluation of pre-existing and new models of …

Background To understand and evaluate care co-ordination for rare conditions, it is
necessary to develop a method for organising different ways of co-ordinating care. One way
to organise and understand care co-ordination is to develop a taxonomy. Taxonomies are
systems used to organise complex phenomena into common conceptual domains and
dimensions based on similarities. 203, 204 Taxonomies are, therefore, relevant to
organising a concept such as care co-ordination, which has been shown to be multifaceted …