[HTML][HTML] Including the blind community in precision medicine research: findings from a national survey and recommendations
M Sabatello, LA Blake, A Chao, A Silverman… - Genetics in …, 2019 - Elsevier
Purpose Despite ongoing efforts to increase diversity of cohorts in precision medicine
research (PMR), little is known about the obstacles to inclusion of blind people and those
with low vision (“the blind community”) in PMR. The blind community comprises~ 10% of the
US adult population and its members commonly experience health disparities.
Understanding barriers to inclusion of this community is necessary to facilitate their
participation. Methods An online survey was developed in disability-accessible formats. Key …
research (PMR), little is known about the obstacles to inclusion of blind people and those
with low vision (“the blind community”) in PMR. The blind community comprises~ 10% of the
US adult population and its members commonly experience health disparities.
Understanding barriers to inclusion of this community is necessary to facilitate their
participation. Methods An online survey was developed in disability-accessible formats. Key …
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