Public attitudes regarding the use of residual newborn screening specimens for research
JR Botkin, E Rothwell, R Anderson, L Stark… - …, 2012 - publications.aap.org
BACKGROUND AND OBJECTIVES: Many state newborn screening (NBS) programs retain
residual NBS bloodspots after the completion of screening. Potential uses for residual
specimens include laboratory quality assurance, biomedical research, and, rarely, forensic
applications. Our objective was to evaluate public opinion about the policies and practices
relevant to the retention and use of residual bloodspots for biomedical research. METHODS:
A total of 3855 respondents were recruited using 3 methods: focus groups (n= 157), paper or …
residual NBS bloodspots after the completion of screening. Potential uses for residual
specimens include laboratory quality assurance, biomedical research, and, rarely, forensic
applications. Our objective was to evaluate public opinion about the policies and practices
relevant to the retention and use of residual bloodspots for biomedical research. METHODS:
A total of 3855 respondents were recruited using 3 methods: focus groups (n= 157), paper or …
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