Return of results policies for genomic research: current practices and the Hearts in Rhythm Organization (HiRO) approach

DA Comber, B Davies, JD Roberts, R Tadros… - Canadian Journal of …, 2022 - Elsevier
Research teams developing biobanks and/or genomic databases must develop policies for
the disclosure and reporting of potentially actionable genomic results to research
participants. Currently, a broad range of approaches to the return of results exist, with some
studies opting for nondisclosure of research results and others following clinical guidelines
for the return of potentially actionable findings from sequencing. In this review, we describe
current practices and highlight decisions a research team must make when designing a …
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