Transition for adolescents and young adults with sickle cell disease in a US midwest urban center: a multilevel perspective on barriers, facilitators, and future …
C Calhoun, L Luo, AA Baumann, A Bauer… - Journal of pediatric …, 2022 - journals.lww.com
Background: Sickle cell disease (SCD), an inherited red blood cell disorder, primarily affects
African Americans in the United States. Adolescents and young adults with SCD (AYA-SCD)
are at risk of high morbidity and mortality when transitioning from pediatric to adult care. The
goal of this qualitative study was to understand factors associated with optimal
implementation of the AYA-SCD transition. Methods: Participants were recruited from a large
hospital system and the community. Interview guides included topics on access to primary …
African Americans in the United States. Adolescents and young adults with SCD (AYA-SCD)
are at risk of high morbidity and mortality when transitioning from pediatric to adult care. The
goal of this qualitative study was to understand factors associated with optimal
implementation of the AYA-SCD transition. Methods: Participants were recruited from a large
hospital system and the community. Interview guides included topics on access to primary …
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