Dear Editor, Hidradenitis suppurativa (HS) is a chronic inflammatory skin disease characterized by nodules, draining sinus tracts, and abscesses in intertriginous regions. The reported prevalence of HS ranges from 0.4% to 4% with an average age of HS disease onset at 23 years. 1 Given the early onset of HS and the advocated use of dedicated social network channels, 2 we explored the current use of information and communications technologies (ICT) in adult HS patients.

Data on adult outpatients with HS from the Department of Dermatology at Bispebjerg Hospital from February to September 2020 was obtained through clinical examination and a survey about ICT usage. ICTs were categorized into three groups (Figure 1). Of 48 HS patients included, 79.2% were female, the mean age was 38.4 (SD= 11.1) years, and all patients had internet access (Table 1). Daily, patients generally used one‐to‐one and one‐to‐many ICT platforms most often (both 93.8%), followed by many‐to‐many ICTs (47.9%). Web browsers (91.7%), Facebook/Messenger (81.3%), and SMS (81.3%) had the most daily users. There was a numerical, but statistically nonsignificant, difference between Hurley stages of users of many‐to‐many ICTs (42.4% of Hurley II+ III versus. 60% of Hurley I, p= 0.26). We found no association between the daily use of ICTs and VAS bother score, 3 family history of HS, number of boils in the last month, and IHS4. 4 There was a statistically significant association between daily ICT use and median disease duration for many‐to‐many ICTs (p= 0.03), but not for one‐to‐one and one‐to‐many (Table 1). One‐to‐many was the preferred ICT category for obtaining general health information (89.6%) and for HS‐related information (81.3%). Information obtained through one‐to‐one ICTs was more frequently rated as very interesting and of good quality for general health