A community-based approach to longitudinal language research with racially and ethnically minoritized autistic young adults: Lessons learned and new directions

T Girolamo, S Ghali, IM Eigsti - American Journal of Speech-Language …, 2023 - ASHA
… A third component of research design entails developing trust and rapport with autistic
REM individuals. Researchers should make the effort to establish themselves as a trusted …

[PDF][PDF] The voices of autism: Using MOOC technologies to meet the needs of vulnerable communities

M Grimley, T Moss, E Donaldson… - Open Oceans: Learning …, 2018 - academia.edu
… on the development and delivery … autism, designed for and with the autism community.
Utilising MOOC technologies to meet the information and support needs of a specific community

How are autistic people involved in the design of extended reality technologies? A systematic literature review

N Newbutt, N Glaser, MS Francois, M Schmidt… - … and Developmental …, 2023 - Springer
… ; and finally, (8) conceptual or descriptive studies (eg, discussing the potential benefits of
using extended reality technologies for the autistic community) were excluded from this review. …

Building applications that matter: Co-designing with adolescents with autism spectrum disorder

R Zhu, D Hardy, T Myers - International Conference on Health Information …, 2018 - Springer
… Application design approaches should be inclusive and partner with users and communities
… interfaces; yet this is not current software design practice. A pilot study was conducted to …

Overview of Issues in Autism Intervention Research: Research Design and Reporting

K Bottema-Beutel, M Sandbank, T Woynaroski - Perspectives of the ASHA …, 2023 - ASHA
… Furthermore, it helps foster trust between researchers and autism community members,
which can be eroded if intervention users discover later that they have participated in …

Interdisciplinary perspectives on designing, understanding and evaluating digital technologies for autism

S Parsons, N Yuill, M Brosnan, J Good - Journal of Enabling …, 2017 - emerald.com
… the autistic community when designing in order to make design … to design an autism simulation
so that people without autism could understand more about what it was like to be autistic. …

Autistic perspectives on the future of clinical autism research

H Pukki, J Bettin, AG Outlaw, J Hennessy… - Autism in …, 2022 - liebertpub.com
… the inclusion of stakeholders in the development of trial designs and outcome measures is
vital… stakeholders, our collective history of engagement in autistic communities and discourses …

“I just want them to see me as… me”: Identity, community, and disclosure practices among college students on the autism spectrum

KM Frost, KM Bailey, BR Ingersoll - Autism in Adulthood, 2019 - liebertpub.com
autism community, but several reported having friends on the spectrum. Most participants
did not tell others about their autism … KMF contributed to the study design, data analysis, and …

“We are the stakeholders with the most at stake”: scientific and autism community co-researchers reflect on their collaborative experience in the CONNECT project

C Jose, P George-Zwicker, L Tardif, A Bouma… - Research Involvement …, 2020 - Springer
designed for this study: one for the scientific co-researchers and one for the autism community
co-… Four scientific co-researchers and four autism community co-researchers filled out the …

Co-designing a communication app to enhance collaborative communication support for secondary students with autism

J O'Rourke, C Kueh, C Holly, L Brook… - … and development, 2023 - Springer
… The co-design workshop employed a purposive sampling approach, to identify participants
… in professional learning communities (PLC) to support students with autism in secondary …