Enhance diversity among researchers to promote participant trust in precision medicine research

D Sierra-Mercado, G Lázaro-Muñoz - The American Journal of …, 2018 - Taylor & Francis
Participants in the study reported by Kraft and colleagues (2018) raised an issue that
supports how having more diversity among researchers could help promote trust toward …

Beyond consent: building trusting relationships with diverse populations in precision medicine research

SA Kraft, MK Cho, K Gillespie, M Halley… - The American Journal …, 2018 - Taylor & Francis
With the growth of precision medicine research on health data and biospecimens, research
institutions will need to build and maintain long-term, trusting relationships with patient …

Diversity beyond race and ethnicity: Enhancing inclusion with an expanded definition of diversity

GP Quinn, CK Gwede, CD Meade - The American Journal of …, 2018 - Taylor & Francis
The authors of “Beyond Consent: Building Trusting Relationships With Diverse Populations
in Precision Medicine”(Kraft et al. 2018) do an excellent job of highlighting the need to …

The role of the health care provider in building trust between patients and precision medicine research programs

A Persaud, VL Bonham - The American Journal of Bioethics, 2018 - Taylor & Francis
Kraft and colleagues identify the importance precision medicine initiatives should place on
building trusting relationships with diverse populations; they argue this is necessary in order …

A paradigm for understanding trust and mistrust in medical research: the Community VOICES study

M Smirnoff, I Wilets, DF Ragin, R Adams… - AJOB empirical …, 2018 - Taylor & Francis
Background: To promote justice in research practice and rectify health disparities, greater
diversity in research participation is needed. Lack of trust in medical research is one of the …

Trust, precision medicine research, and equitable participation of underserved populations

M Sabatello, S Callier, NA Garrison… - The American Journal of …, 2018 - Taylor & Francis
Through the use of culturally appropriate videos on precision medicine research (PMR) that
were developed and tailored to five racial and ethnic groups of patients, and subsequent …

Determinants of trustworthiness to conduct medical research: findings from focus groups conducted with racially and ethnically diverse adults

DM Griffith, EC Jaeger, EM Bergner, S Stallings… - Journal of general …, 2020 - Springer
Background Potential research participants, particularly those from racial and ethnic groups
underrepresented in medical research, often decide to participate based on how they judge …

Variations in racial and ethnic groups' trust in researchers associated with willingness to participate in research

WT Hu, SM Bergren, DK Dychtwald, Y Ma… - Humanities and Social …, 2023 - nature.com
Low enrollment in US biomedical research by non-White adults has historically been
attributed to mistrust, but few studies have simultaneously examined dimensions of trust in …

What's in a name? The politics of 'precision medicine'

S Chan, S Erikainen - The American Journal of Bioethics, 2018 - Taylor & Francis
While both types of trust may be required for including (underrepresented) populations in
biomedical research, it is important to distinguish the role of these types of trust: Vertical trust …

Trustworthiness in Untrustworthy Times: Response to Open Peer Commentaries on Beyond Consent

SA Kraft, MK Cho, K Gillespie, N Varsava… - The American Journal …, 2018 - Taylor & Francis
In Beyond Consent (Kraft et al. 2018), we argued that institutional trustworthiness will be
critical to the success of precision medicine research, particularly insofar as it supports …