Using patient-reported outcomes and PROMIS in research and clinical applications: experiences from the PCORI pilot projects
Purpose The field of patient-centered outcomes research (PCOR) continues to develop.
Patient-reported outcomes and, in particular the Patient-Reported Outcomes Measurement …
Patient-reported outcomes and, in particular the Patient-Reported Outcomes Measurement …
[HTML][HTML] Saving time and effort: best practice for adapting existing patient-reported outcome measures in hepatology
It is increasingly recognised that collecting patient reported outcome measures (PROMs)
data is an important part of healthcare and should be considered alongside traditional …
data is an important part of healthcare and should be considered alongside traditional …
Development of EMPRO: a tool for the standardized assessment of patient‐reported outcome measures
Objective: This study was aimed to develop a tool for the standardized assessment of patient‐
reported outcomes (PROs) to assist the choice of instruments. Methods: An expert panel …
reported outcomes (PROs) to assist the choice of instruments. Methods: An expert panel …
[HTML][HTML] Assessing quality of life in solid organ transplant recipients: a systematic review of the development, content, and quality of available condition-and transplant …
Purpose We aimed to identify the condition-and transplant-specific patient-reported outcome
measures (PROMs) available to measure quality of life (QoL) in solid organ transplant (SOT) …
measures (PROMs) available to measure quality of life (QoL) in solid organ transplant (SOT) …
Results of a Patient Reported Experience Measure (PREM) to measure the rare disease patients and caregivers experience: a Spanish cross-sectional study
M Guilabert, A Martínez-García… - Orphanet Journal of …, 2021 - Springer
Objective To measure the experience of the person having a rare disease in order to identify
objectives for optimal care in the health care received by these patients. Methods. A cross …
objectives for optimal care in the health care received by these patients. Methods. A cross …
Patient-reported outcome measures in pediatric solid organ transplantation: exploring stakeholder perspectives on clinical implementation through qualitative …
SJ Anthony, K Young, SJ Pol, EK Selkirk… - Quality of Life …, 2021 - Springer
Purpose Patient-reported outcome measures (PROMs) are standardized instruments used
to collect data about the subjective assessment of medical care from the patient perspective …
to collect data about the subjective assessment of medical care from the patient perspective …
[引用][C] The limitations of patient-reported outcome measurement in oncology
SP McKenna - J Clin Pathways, 2016
[HTML][HTML] Use of patient-reported outcome (PRO) measures at group and patient levels: experiences from the generic integrated PRO system, WestChronic
Background: Patient-reported outcome (PRO) measures may be used at a group level for
research and quality improvement and at the individual patient level to support clinical …
research and quality improvement and at the individual patient level to support clinical …
Comparison of the EQ-5D-Y-5L, EQ-5D-Y-3L and PedsQL in children and adolescents
J Verstraete, D Scott - Journal of Patient-Reported Outcomes, 2022 - Springer
Background There is an increased use of Patient-Reported Outcome Measures (PROMs) in
children and adolescents. The aim of this study was to compare the feasibility, concurrent …
children and adolescents. The aim of this study was to compare the feasibility, concurrent …
The National Institutes of Health patient-reported outcomes measurement information system (PROMIS): a view from the UK
The interest in patient-reported outcome measures (PROMs) continues to increase as
recognition of their potential utility rises in an effort to make health systems more patient …
recognition of their potential utility rises in an effort to make health systems more patient …