Linking cohort-based data with electronic health records: a proof-of-concept methodological study in Hong Kong

L Gao, MTY Leung, X Li, CSL Chui, RSM Wong… - BMJ open, 2021 - bmjopen.bmj.com
Objectives Data linkage of cohort-based data and electronic health records (EHRs) has
been practised in many countries, but in Hong Kong there is still a lack of such research. To …

[HTML][HTML] Record linkage to enhance consented cohort and routinely collected health data from a UK birth cohort

KS Tingay, A Bandyopadhyay, L Griffiths… - … Journal of Population …, 2019 - ncbi.nlm.nih.gov
Background In longitudinal health research, combining the richness of cohort data to the
extensiveness of routine data opens up new possibilities, providing information not available …

Can a nation-wide e-cohort of ADHD and ASD in childhood be established using Welsh routinely available datasets?

K Langley, M Del Pozo-Banos, S Daalsgard… - BMJ open, 2023 - bmjopen.bmj.com
Objectives We investigated the feasibility and validity of establishing a nationwide e-cohort
of individuals with a diagnosis of attention deficit hyperactivity disorder (ADHD) and/or …

Examining the quality of record linkage process using nationwide Brazilian administrative databases to build a large birth cohort

D Almeida, D Gorender, MY Ichihara, S Sena… - BMC medical informatics …, 2020 - Springer
Background Research using linked routine population-based data collected for non-
research purposes has increased in recent years because they are a rich and detailed …

Linking data for mothers and babies in de-identified electronic health data

K Harron, R Gilbert, D Cromwell, J Van Der Meulen - PloS one, 2016 - journals.plos.org
Objective Linkage of longitudinal administrative data for mothers and babies supports
research and service evaluation in several populations around the world. We established a …

[HTML][HTML] Record linkage of population-based cohort data from minors with national register data: a scoping review and comparative legal analysis of four European …

JN Doetsch, V Dias, MS Indredavik, J Reittu… - Open Research …, 2021 - ncbi.nlm.nih.gov
Background: The GDPR was implemented to build an overarching framework for personal
data protection across the EU/EEA. Linkage of data directly collected from cohort …

Linking mothers and infants within electronic health records: a comparison of deterministic and probabilistic algorithms

E Baldwin, K Johnson, H Berthoud… - … and drug safety, 2015 - Wiley Online Library
Purpose To compare probabilistic and deterministic algorithms for linking mothers and
infants within electronic health records (EHRs) to support pregnancy outcomes research …

Linking 2006 Census and hospital data in Canada.

M Rotermann, C Sanmartin, R Trudeau… - Health …, 2015 - search.ebscohost.com
Background: Record linkage is commonly used in health research to fill data gaps. This
study summarizes the linkage of the 2006 Census of Population (excluding Quebec) to …

Linkage methods for connecting children with parents in electronic health record and state public health insurance data

H Angier, R Gold, C Crawford, JP O'Malley… - Maternal and child …, 2014 - Springer
The objective of this study was to develop methodologies for creating child–parent 'links' in
two healthcare-related data sources. We linked children and parents who were patients in a …

An electronic health record (EHR) phenotype algorithm to identify patients with attention deficit hyperactivity disorders (ADHD) and psychiatric comorbidities

I Slaby, HS Hain, D Abrams, FD Mentch… - Journal of …, 2022 - Springer
Background In over half of pediatric cases, ADHD presents with comorbidities, and often, it is
unclear whether the symptoms causing impairment are due to the comorbidity or the …