Genomic science and associated technologies are facilitating an unprecedented rate of
discovery of novel insights into the relationship between human genetic variation and …

There are several features of genetic and genomic research that challenge established
norms of informed consent. In this paper, we discuss these challenges, explore specific …

As genetic and genomic studies grow in scale, there are ethical concerns related to the
collection and use of genetic information. The emergence of large public databases …

The emerging need for family-centric initiatives for obtaining consent in personal genome
research | Genome Medicine Skip to main content SpringerLink Account Menu Find a journal …

The complexities of the informed consent process for participating in research in genomic
medicine are well-documented. Inspired by the potential for Dynamic Consent to increase …

Informed consent, the process of gathering autonomous authorization for a medical
intervention or medical research participation, is a fundamental component of medical …

Neither the range of potential results from genomic research that might be returned to
participants nor future uses of stored data and biospecimens can be fully predicted at the …

Informed Consent in the Genomics Era | PLOS Medicine Skip to main content
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Genetic variant associations and advances in research technologies are generating an
unprecedented volume of genomic data. Whole-genome sequencing will introduce even …

For as long as the federal regulations governing human subjects research have existed, the
practice of informed consent has been attacked as culturally biased, legalistic, ritualistic and …