Abstract Background Since Huntington's Disease (HD) is a familial disease with an average
onset in the mid-thirties, one might expect that spousal carers are concerned with providing …

Previous research and clinical experience suggest that Huntington's disease (HD) can
considerably affect family life, particularly for young people (YP) at risk. The goal of this study …

Family members in families with severe chronic disease play important roles in care‐giving.
In families affected by Huntington's disease (HD), caregivers encounter practical and …

The study reported here presents a detailed description of what it is like to parent a child with
juvenile Huntington's disease in families across four European countries. Its primary aim …

Aim. The aim of this research was to identify the needs and coping strategies of individuals
with Huntington disease and their family members/carers and to ascertain the extent to …

Caring for a person with chronic disease often rests on the patient's family. Nevertheless,
most studies on the needs, quality of life and caregiver burden focus on different types of …

People with Huntington's disease (HD) often experience psychological difficulties linked with
disease progression and the adjustment to living with a chronic condition, which are also …

Research into the experience of the Huntington's disease (HD) family caregiver has
established that HD carers experience a number of unique obstacles within their caregiving …

Whilst a growing body of work has explored family communication about Huntington's
disease and how at-risk individuals learn about their risk, the experience of telling a partner …

Background: For young people in families with Huntington's disease (HD) the challenge of
having an affected family member (AFM) compounds challenges related to being at risk of …