Neurobiological and psychosocial correlates of communication between Huntington's disease patients and their offspring
KH Watson, AE Ciriegio, AC Pfalzer… - The Journal of …, 2021 - Am Neuropsych Assoc
Objective: Huntington's disease (HD) is an autosomal dominant neurodegenerative disease
that presents significant challenges to family communication. The investigators examined …
that presents significant challenges to family communication. The investigators examined …
Families affected by huntington's disease report difficulties in communication, emotional involvement, and problem solving
CMH Jona, I Labuschagne… - Journal of …, 2017 - content.iospress.com
Background: Family functioning in Huntington's disease (HD) is known from previous studies
to be adversely affected. However, which aspects of family functioning are disrupted is …
to be adversely affected. However, which aspects of family functioning are disrupted is …
Investigating the interplay of working memory, affective symptoms, and coping with stress in offspring of parents with Huntington's disease.
AE Ciriegio, AC Pfalzer, L Hale, KE McDonell… - …, 2020 - psycnet.apa.org
Objective: The offspring of parents with Huntington's disease (HD) are faced with substantial
levels of chronic uncontrollable and unpredictable stress. These stressors may place them at …
levels of chronic uncontrollable and unpredictable stress. These stressors may place them at …
Assessing mental health difficulties of persons with Huntington's disease: Does informant presence make a difference?
Objective: Persons with Huntington's disease (HD) often have communication difficulties and
cognitive impairments, making mental health assessment difficult. Informants close to the …
cognitive impairments, making mental health assessment difficult. Informants close to the …
An exploration of the experience of Huntington's disease in family dyads: An interpretative phenomenological analysis
C Maxted, J Simpson, S Weatherhead - Journal of Genetic Counseling, 2014 - Springer
Huntington's disease (HD) is a hereditary, late onset, neurodegenerative disorder. Children
of affected parents have a 50% chance of inheriting HD. Research into the psychological …
of affected parents have a 50% chance of inheriting HD. Research into the psychological …
Pilot investigation into the need and feasibility of a psychoeducation and support group for male caregivers of those with Huntington's disease
SL Velissaris, R Hosken, C Gluyas - Journal of Community Genetics, 2021 - Springer
The psychosocial sequelae of caregiving in Huntington's disease (HD) have been shown to
be extensive, even in comparison with other progressive neurological disorders. Based on …
be extensive, even in comparison with other progressive neurological disorders. Based on …
Intrapersonal and Interpersonal Disengagement Coping: Associations with Emotions of Youth At-Risk for Huntington's Disease
KH Watson, AE Ciriegio, AC Pfalzer… - Journal of …, 2023 - content.iospress.com
Background: Families in which a parent has Huntington's disease (HD) are faced with
significant stressors that can contribute to difficulties in communicating together about illness …
significant stressors that can contribute to difficulties in communicating together about illness …
“No one else sees the difference:” family members' perceptions of changes in persons with preclinical Huntington disease
JK Williams, R Hamilton, C Nehl… - American Journal of …, 2007 - Wiley Online Library
Manifestations of Huntington disease (HD) prior to clinical diagnosis are not well
understood. This study documents adult family members' perceptions of changes and their …
understood. This study documents adult family members' perceptions of changes and their …
All in the family: Huntington's disease, variability and challenges for clinical neuropsychology
LJ Tippett, VM Hogg - Neuropsychological Formulation: A Clinical …, 2016 - Springer
Huntington's disease (HD) is a progressive neurodegenerative disorder caused by a single
autosomal dominant gene. Despite this, there is surprising variability in the triad of clinical …
autosomal dominant gene. Despite this, there is surprising variability in the triad of clinical …
Couples' coping in prodromal Huntington disease: A mixed methods study
NR Downing, JK Williams, AL Leserman… - Journal of genetic …, 2012 - Springer
Huntington disease (HD) includes a prodromal phase with behavioral, cognitive, and motor
function decline occurring up to 15 years prior to diagnosis. This study used mixed methods …
function decline occurring up to 15 years prior to diagnosis. This study used mixed methods …