Communication and Huntington's disease: qualitative interviews and focus groups with persons with Huntington's disease, family members, and carers

L Hartelius, M Jonsson, A Rickeberg… - International journal of …, 2010 - Wiley Online Library
Background: As an effect of the cognitive, emotional and motor symptoms associated with
Huntington's disease, communicative interaction is often dramatically changed. No study …

Speech and language difficulties in Huntington's disease: A qualitative study of patients' and professional caregivers' experiences

TN Grimstvedt, JU Miller… - … Journal of Language …, 2021 - Wiley Online Library
Background Huntington's disease (HD) is a neurodegenerative disease characterized by a
triad of motor, cognitive and psychological symptoms, leading to a gradual breakdown of …

'I have a feeling I can't speak to anybody': A thematic analysis of communication perspectives in people with Huntington's disease

N Zarotti, J Simpson, I Fletcher - Chronic Illness, 2019 - journals.sagepub.com
Objectives This study explored the perspectives of people affected by Huntington's disease
(HD) on their own communicative abilities. Methods Qualitative semi-structured interviews …

Linguistic and cognitive supplementation strategies as augmentative and alternative communication techniques in Huntington's disease: Case report

E Klasner, K Yorkston - Augmentative and Alternative …, 2001 - Taylor & Francis
Huntington's disease is a hereditary, neurodegenerative disorder with motor, cognitive, and
emotional deficits that have a profound effect on the ability to communicate and must be …

Comprehension of complex discourse in different stages of Huntington's disease

C Saldert, A Fors, S Ströberg… - International journal of …, 2010 - Taylor & Francis
Background: Huntington's disease not only affects motor speech control, but also may have
an impact on the ability to produce and understand language in communication. Aims: The …

Language disorders in Huntington disease: a systematic literature review

M Gagnon, J Barrette, J Macoir - Cognitive and Behavioral …, 2018 - journals.lww.com
Objective: A systematic review examining the presence and nature of language disorders
associated with Huntington disease (HD). Background: HD is characterized by gradual …

Using Talking Mats to support communication in persons with Huntington's disease

U Ferm, A Sahlin, L Sundin… - International Journal of …, 2010 - Taylor & Francis
Background: Many individuals with Huntington's disease experience reduced functioning in
cognition, language and communication. Talking Mats is a visually based low technological …

Families affected by huntington's disease report difficulties in communication, emotional involvement, and problem solving

CMH Jona, I Labuschagne… - Journal of …, 2017 - content.iospress.com
Background: Family functioning in Huntington's disease (HD) is known from previous studies
to be adversely affected. However, which aspects of family functioning are disrupted is …

Management of speech, language and communication difficulties in Huntington's disease

A Hamilton, U Ferm, AW Heemskerk… - Neurodegenerative …, 2012 - Taylor & Francis
Speech and language therapists play an important role in the management of
communication difficulties in Huntington's disease (HD). As the disease progresses the …

“I'm scared of being like mum”: the experience of adolescents living in families with Huntington disease

CM Mand, L Gillam, RE Duncan… - Journal of Huntington's …, 2015 - content.iospress.com
Background: The debilitating and very visible motor effects of the incurable, progressive, and
fatal neurodegenerative condition Huntington disease (HD) are accompanied by more …