Harms and risks to groups and third-parties can be significant in the context of research,
particularly in data-centric studies involving genomic, artificial intelligence, and/or machine …

• What is “sufficient” information to make a decision regarding “types” of future research
use?• Who is the “reasonable person” and what type of information “would they expect”?• …

Bioethicists frequently call for empirical researchers to engage participants and community
members in their research, but don't themselves typically engage community members in …

Much of precision medicine is driven by big health data research—the analysis of massive
datasets representing the complex web of genetic, behavioral, environmental, and other …

Emerging technologies for analyzing biospecimens have led to advances in understanding
the interacting role of genetics and environment on development and individual responsivity …

The risks and benefits of research using large databases of personal information are
evolving in an era of ubiquitous, internet-based data exchange. In addition, information …

Precision medicine research is rapidly taking a lead role in the pursuit of new ways to
improve health and prevent disease, but also presents new challenges for protecting human …

In “Strangers at the Benchside: Research Ethics Consultation”, Cho and colleagues (2008)
present Stanford's “hybrid” approach to research ethics consultation. This consultation …

Recent national calls for ethical, legal, and social implications (ELSI) research to “assess
and address how ethical, historical, social, economic, legal, regulatory, socio-cultural, and …

In the past 20years there has been increasing recognition that clinical research results be
communicated to study participants after completion of the research study. At a minimum …