Best practices for ethical sharing of individual-level health research data from low-and middle-income settings

S Bull, PY Cheah, S Denny, I Jao… - Journal of Empirical …, 2015 - journals.sagepub.com
Sharing individual-level data from clinical and public health research is increasingly being
seen as a core requirement for effective and efficient biomedical research. This article …

Views of ethical best practices in sharing individual-level data from medical and public health research: a systematic scoping review

S Bull, N Roberts, M Parker - Journal of Empirical Research …, 2015 - journals.sagepub.com
There is increasing support for sharing individual-level data generated by medical and
public health research. This scoping review of empirical research and conceptual literature …

Sharing public health research data: toward the development of ethical data-sharing practice in low-and middle-income settings

M Parker, S Bull - Journal of Empirical Research on Human …, 2015 - journals.sagepub.com
It is increasingly recognized that effective and appropriate data sharing requires the
development of models of good data-sharing practice capable of taking seriously both the …

Addressing global data sharing challenges

GC Alter, M Vardigan - Journal of Empirical Research on …, 2015 - journals.sagepub.com
This issue of the Journal of Empirical Research on Human Research Ethics highlights the
ethical issues that arise when researchers conducting projects in low-and middle-income …

Sharing research data to improve public health: a funder perspective

D Carr, K Littler - Journal of Empirical Research on Human …, 2015 - journals.sagepub.com
Through the Public Health Research Data Forum, global health research funders are
working together to increase the availability of public health and epidemiology research data …

Sweat, skepticism, and uncharted territory: a qualitative study of opinions on data sharing among public health researchers and research participants in Mumbai, India

K Hate, S Meherally, N Shah More… - Journal of Empirical …, 2015 - journals.sagepub.com
Efforts to internalize data sharing in research practice have been driven largely by
developing international norms that have not incorporated opinions from researchers in low …

Developing ethical practices for public health research data sharing in South Africa: The views and experiences from a diverse sample of research stakeholders

SG Denny, B Silaigwana… - Journal of Empirical …, 2015 - journals.sagepub.com
The abundance of South African clinical and public health research data has the potential to
unlock important and valuable future advances in biomedical science. Amid increasing calls …

Trust, respect, and reciprocity: Informing culturally appropriate data-sharing practice in Vietnam

L Merson, TV Phong, LNT Nhan… - Journal of Empirical …, 2015 - journals.sagepub.com
International science funders and publishers are driving a growing trend in data sharing.
There is mounting pressure on researchers in low-and middle-income settings to conform to …

Involving research stakeholders in developing policy on sharing public health research data in Kenya: views on fair process for informed consent, access oversight …

I Jao, F Kombe, S Mwalukore, S Bull… - Journal of Empirical …, 2015 - journals.sagepub.com
Increased global sharing of public health research data has potential to advance scientific
progress but may present challenges to the interests of research stakeholders, particularly in …

What ethical approaches are used by scientists when sharing health data? An interview study

J Viberg Johansson, HB Bentzen, D Mascalzoni - BMC Medical Ethics, 2022 - Springer
Background Health data-driven activities have become central in diverse fields (research, AI
development, wearables, etc.), and new ethical challenges have arisen with regards to …