Patient engagement in research has many benefits including the alignment of research
aims, projects, and outcomes with those of the ultimate end-user. As a result, patient …

Background The overall aim of this program of research is to assess when/how patient
partners are compensated financially for their contributions to health research. The research …

Background Patient engagement in research refers to collaboration between researchers
and patients (ie, individuals with lived experience including informal caregivers) in …

Research that engages patients on the research team is often supported by grant funding
from different organizations and, in some cases, principal investigators (who control the …

Background An integral aspect of patient engagement in research, also known as patient
and public involvement, is appropriately recognising patient partners for their contributions …

Patient and family engagement has become a widely accepted approach in health care
research. We recognize that research conducted in partnership with people with relevant …

Engaging in research—whether as a participant or as a research partner—takes time, and
time is valuable. Beyond time, there may be actual costs or resources required for …

Background The role of patient involvement in health research has evolved over the past
decade. Despite efforts to engage patients as partners, the role is not well understood. We …

Background US research organizations increasingly are supporting patient and stakeholder
engagement in health research with a goal of producing more useful, relevant and patient …

Background There are a myriad of ways patient partners can enact their roles on research
teams. International guidelines emphasize the need for a collaborative approach to …