Thought leader perspectives on benefits and harms in precision medicine research

LM Beskow, CM Hammack, KM Brelsford - PLoS One, 2018 - journals.plos.org
Precision medicine research is underway to identify targeted approaches to improving
health and preventing disease. However, such endeavors raise significant privacy and …

Thought leader perspectives on participant protections in precision medicine research

CM Hammack, KM Brelsford… - Journal of Law, Medicine & …, 2019 - cambridge.org
Precision medicine research is rapidly taking a lead role in the pursuit of new ways to
improve health and prevent disease, but also presents new challenges for protecting human …

Thought leader comparisons of risks in precision medicine research

LM Beskow, CM Hammack‐Aviran… - Ethics & Human …, 2020 - Wiley Online Library
Biomedical research is increasingly capitalizing on an array of data to illuminate the
interplay between “omics,” lifestyle, and health. Leveraging this information presents …

Experiences at a federally qualified health center support expanded conception of the gifts of precision medicine

CP Neuhaus, JT Crane - The American Journal of Bioethics, 2021 - Taylor & Francis
In “Obligations of the Gift,” Lee (2021) argues that ethical thinking regarding return of genetic
research results has been too narrowly focused on individual consent and participants'“right …

Genomics, big data, and broad consent: a new ethics frontier for prevention science

CB Fisher, DM Layman - Prevention Science, 2018 - Springer
Emerging technologies for analyzing biospecimens have led to advances in understanding
the interacting role of genetics and environment on development and individual responsivity …

Enhance diversity among researchers to promote participant trust in precision medicine research

D Sierra-Mercado, G Lázaro-Muñoz - The American Journal of …, 2018 - Taylor & Francis
Participants in the study reported by Kraft and colleagues (2018) raised an issue that
supports how having more diversity among researchers could help promote trust toward …

Interrogating the Value of Return of Results for Diverse Populations: Perspectives from Precision Medicine Researchers

CE McMahon, N Foti, M Jeske, WR Britton… - AJOB Empirical …, 2024 - Taylor & Francis
Background Over the last decade, the return of results (ROR) in precision medicine research
(PMR) has become increasingly routine. Calls for individual rights to research results have …

Adapting standards: ethical oversight of participant-led health research

E Vayena, J Tasioulas - PLoS medicine, 2013 - journals.plos.org
Adapting Standards: Ethical Oversight of Participant-Led Health Research | PLOS Medicine Skip
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What's in a name? The politics of 'precision medicine'

S Chan, S Erikainen - The American Journal of Bioethics, 2018 - Taylor & Francis
While both types of trust may be required for including (underrepresented) populations in
biomedical research, it is important to distinguish the role of these types of trust: Vertical trust …

Innovating for a just and equitable future in genomic and precision medicine research

DD Dolan, MK Cho, SSJ Lee - The American Journal of Bioethics, 2023 - Taylor & Francis
From its inception, genomics has been a speculative endeavor, fixated on a far-off horizon
that would deliver on the promise of targeted diagnostics and individualized therapeutics …