The risks and benefits of research using large databases of personal information are evolving in an era of ubiquitous, internet-based data exchange. In addition, information …
Background: To promote effective genome-scale research, genomic and clinical data for large population samples must be collected, stored, and shared. Methods: We conducted …
Internet-connected devices are changing the way people live, work, and relate to one another. For prevention scientists, technological advances create opportunities to promote …
CN Rotimi, PA Marshall - Genome Medicine, 2010 - Springer
Genomic science and associated technologies are facilitating an unprecedented rate of discovery of novel insights into the relationship between human genetic variation and …
JPA Ioannidis - The American Journal of Bioethics, 2013 - Taylor & Francis
Informed consent has been the cornerstone of conducting ethical research involving humans. However, it is increasingly argued that consent bias distorts results; that consent is …
Precision medicine research is underway to identify targeted approaches to improving health and preventing disease. However, such endeavors raise significant privacy and …
CM Hammack, KM Brelsford… - Journal of Law, Medicine & …, 2019 - cambridge.org
Precision medicine research is rapidly taking a lead role in the pursuit of new ways to improve health and prevent disease, but also presents new challenges for protecting human …
A Ballantyne - Bioethics, 2019 - Wiley Online Library
This paper contends that a research ethics approach to the regulation of health data research is unhelpful in the era of population‐level research and big data because it results …
Abstract The Human Genome Project and rapid technological advances in genomics have begun to enrich prevention science's contributions to understanding the role of genetic …