1 Whether this data availability is technologically shaped as data pooling or as federated
learning is not decisive for our argument here. The draft regulation of the European …

The May 2022 proposal from the European commission for a 'European health data
space'envisages advantages for health from exploiting the growing mass of health data in …

Collaborative networks and data sharing initiatives are broadening the opportunities for the
advancement of science. These initiatives offer greater transparency in science, with the …

Background To foster responsible data sharing in health research, ethical governance
complementary to the EU General Data Protection Regulation is necessary. A governance …

Digitization offers great potential–especially in medicine. Cross-domain and cross-
institutional linkage, big data, artificial intelligence and robotics can all help to improve …

Sharing data is a scientific imperative that accelerates scientific discoveries, reinforces open
science inquiry, and allows for efficient use of public investment and research resources …

Abstract By Timo Minssen (CeBIL, UCPH), Sara Gerke & Carmel Shachar A recent US
lawsuit highlights crucial challenges at the interface of data utility, patient privacy & data …

In their paper “Brain Data in Context: Are New Rights the Way to Mental and Brain Privacy?”
Susser and Cabrera (2024) argue against the notion that specific rights may be necessary to …

An ethical advancement of scientific knowledge demands a delicate equilibrium between
benefits and harms, in particular in health-related research. When applying and advancing …

Earlier this year, the European Commission presented its highly anticipated proposal for the
European Health Data Space, with a view to harness “the power of health data for people …