When do genetic researchers have a duty to recontact study participants?

CH Wade, AL Kalfoglou - The American Journal of Bioethics, 2006 - Taylor & Francis
Accepting the proposal by Ravitsky and Wilfond (2006) to adopt a “result-evaluation
approach” would likely increase the number of studies that returned genetic test results to …

Taking our obligations to research participants seriously: disclosing individual results of genetic research

TA Manolio - The American Journal of Bioethics, 2006 - Taylor & Francis
The American Journal of Bioethics point out, it is important to consider issues of disclosure
as part of the original study design and to be very clear with potential study participants …

Disclosing individual genetic results to research participants

V Ravitsky, BS Wilfond - The American Journal of Bioethics, 2006 - Taylor & Francis
Investigators and institutional review boards should integrate plans about the appropriate
disclosure of individual genetic results when designing research studies. The ethical …

Undesirable implications of disclosing individual genetic results to research participants

LA Meltzer - The American Journal of Bioethics, 2006 - Taylor & Francis
Ravitsky and Wilfond (2006) correctly highlight the need for uniform guidelines to assist
investigators and institutional review boards (IRBs) in determining whether to disclose …

Clinical utility and full disclosure of genetic results to research participants

RR Sharp, MW Foster - The American journal of bioethics, 2006 - Taylor & Francis
Ravitsky and Wilfond (2006) provide a sophisticated and complex analytic framework for
determining whether to report genetic information to research participants. If this framework …

Best laid plans for offering results go awry

LS Parker - The American Journal of Bioethics, 2006 - Taylor & Francis
Elsewhere I suggest the current momentum toward routinely offering individualized genetic
research results should be resisted (Parker 2006). Contrary to Ravitsky and Wilfond (2006), I …

Obligations in offering to disclose genetic research results

CV Fernandez, C Weijer - The American Journal of Bioethics, 2006 - Taylor & Francis
The American Journal of Bioethics individual genetic data from a research study should be
conceptualized in a manner similar to the handling of comparable data in other types of …

Considering the nature of individual research results

LM Beskow - The American Journal of Bioethics, 2006 - Taylor & Francis
To characterize the range of opinions in the current debate over disclosure of individual
genetic research results, Ravitsky and Wilfond (2006) describe the opposing ends of the …

Disclosing genetic research results: examples from practice

KE Ormond - The American Journal of Bioethics, 2006 - Taylor & Francis
Using examples from my own practice as a genetic counselor, I would like to provide a
context for how the points raised by Ravitsky and Wilfond (2006) and other peer …

Response to open peer commentaries on “Disclosing individual genetic results to research participants”: defining clinical utility and revisiting the role of relationships

V Ravitsky, BS Wilfond - The American Journal of Bioethics, 2006 - Taylor & Francis
The commentaries on our paper demonstrate that the concern underlying our investigation
is valid. The two polarized approaches we delineate at the outset of our paper, the 'research …