Background: The debilitating and very visible motor effects of the incurable, progressive, and
fatal neurodegenerative condition Huntington disease (HD) are accompanied by more …

Research on families with Huntington Disease (HD) has primarily focused on adult decision-
making surrounding predictive genetic testing and caregiver stress. Little is known about the …

Background Growing up with a parent with Huntington's disease (HD) profoundly impacts
children. However, this impact and children's needs are often misunderstood, even by …

There has been a paucity of research into the psychosocial impact of juvenile Huntington's
disease (JHD) on the child and the family. The study reported here is part of larger project …

Huntington's disease (HD) is a hereditary, late onset, neurodegenerative disorder. Children
of affected parents have a 50% chance of inheriting HD. Research into the psychological …

This chapter covers the challenges young people impacted by Huntington's disease (HD)
experience on a daily basis. Research suggests young people in HD families are twice as …

Background: For young people in families with Huntington's disease (HD) the challenge of
having an affected family member (AFM) compounds challenges related to being at risk of …

Affecting over 30,000 people, with approximately 200,000 at risk in the United States,
Huntington's disease (HD) is often called a disease of the family (Huntington's Disease …

Huntington's disease is a genetic neurodegenerative condition with wide physical and
psychological impacts. Children of a parent with the condition have a 50% chance of …

Objectives: To explore the healthcare experiences of families affected by Huntington
disease (HD), a fatal neurodegenerative genetic disorder, and elicit their suggestions for …