Participant recall and understandings of information on biobanking and future genomic research: experiences from a multi-disease community-based health screening …

M Luthuli, N Ngwenya, D Gumede, R Gunda… - BMC Medical …, 2022 - Springer
Background Limited research has been conducted on explanations and understandings of
biobanking for future genomic research in African contexts with low literacy and limited
healthcare access. We report on the findings of a sub-study on participant understanding
embedded in a multi-disease community health screening and biobank platform study
known as 'Vukuzazi'in rural KwaZulu-Natal, South Africa. Methods Semi-structured
interviews were conducted with research participants who had been invited to take part in …

Participant recall and understandings of information on biobanking and future genomic research: experiences from a multi-disease community-based health screening …

J Seeley, EB Wong, MJ Siedner, O Koole, D Gareta… - 2022 - philpapers.org
BackgroundLimited research has been conducted on explanations and understandings of
biobanking for future genomic research in African contexts with low literacy and limited
healthcare access. We report on the findings of a sub-study on participant understanding
embedded in a multi-disease community health screening and biobank platform study
known as 'Vukuzazi'in rural KwaZulu-Natal, South Africa. MethodsSemi-structured interviews
were conducted with research participants who had been invited to take part in the Vukuzazi …
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