[HTML][HTML] Self-reliance, social norms, and self-stigma as barriers to psychosocial help-seeking among Rural Cancer survivors with Cancer-related distress: qualitative …

PB DeGuzman, DL Vogel, V Bernacchi… - JMIR Formative …, 2022 - formative.jmir.org
PB DeGuzman, DL Vogel, V Bernacchi, MA Scudder, MJ Jameson
JMIR Formative Research, 2022formative.jmir.org
Background: Even when technology allows rural cancer survivors to connect with supportive
care providers from a distance, uptake of psychosocial referrals is low. Fewer than one-third
of participants in a telemedicine intervention for identifying rural survivors with high distress
and connecting them with care accepted psychosocial referral. Objective: The purpose of
this research was to examine the reasons for which rural cancer survivors did not accept a
psychosocial referral. Methods: We utilized a qualitative design to address the research …
Abstract
Background: Even when technology allows rural cancer survivors to connect with supportive care providers from a distance, uptake of psychosocial referrals is low. Fewer than one-third of participants in a telemedicine intervention for identifying rural survivors with high distress and connecting them with care accepted psychosocial referral.
Objective: The purpose of this research was to examine the reasons for which rural cancer survivors did not accept a psychosocial referral.
Methods: We utilized a qualitative design to address the research purpose. We interviewed participants who had been offered psychosocial referral. Semistructured interviews were conducted 6 weeks later (n= 14), and structured interviews were conducted 9 months later (n= 6). Data were analyzed descriptively using an inductive approach.
Results: Ultimately, none of the rural cancer survivors (0/14, 0%) engaged with a psychosocial care provider, including those who had originally accepted referrals (0/4, 0%) for further psychosocial care. When explaining their decisions, survivors minimized their distress, emphasizing their self-reliance and the need to handle distress on their own. They expressed a preference for dealing with distress via informal support networks, which was often limited to close family members. No survivors endorsed public stigma as a barrier to accepting psychosocial help, but several suggested that self-stigma associated with not being able to handle their own distress was a reason for not seeking care.
Conclusions: Rural cancer survivors’ willingness to accept a psychosocial referral may be mediated by the rural cultural norm of self-reliance and by self-stigma. Interventions to address referral uptake may benefit from further illumination of these relationships as well as a strength-based approach that emphasizes positive aspects of the rural community and individual self-affirmation.
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