There is a growing international agreement on the need to provide greater access to
research data and bio-specimen collections to optimize their long-term value and exploit …

Data sharing is increasingly regarded as an ethical and scientific imperative that advances
knowledge and thereby respects the contributions of the participants. Because of this and …

Abstract The Wellcome Trust Sanger Institute has a strong reputation for prepublication data
sharing as a result of its policy of rapid release of genome sequence data and particularly …

The FAIR guiding principles for research data stewardship (findability, accessibility,
interoperability, and reusability) look set to become a cornerstone of research in the life …

Fostering data sharing is a scientific and ethical imperative. Health gains can be achieved
more comprehensively and quickly by combining large, information-rich datasets from …

Background Governments, funding bodies, institutions, and publishers have developed a
number of strategies to encourage researchers to facilitate access to datasets. The rationale …

The evolution of genomic research and its integration into clinical practice, as they become
international—even global—endeavors, has brought us to a place where scientists and …

Abstract The Global Alliance for Genomics and Health (GA4GH) proposes a data access
policy model—“registered access”—to increase and improve access to data requiring an …

Within the myriad articles about participants' opinions of genomics research, the views of a
distinct group–people with a rare disease (RD)–are unknown. It is important to understand if …

Advances in technologies and biomedical informatics have expanded capacity to generate
and share biomedical data. With a lens on genomic data, we present a typology …