Background Governments, funding bodies, institutions, and publishers have developed a
number of strategies to encourage researchers to facilitate access to datasets. The rationale …

The field of human genomics has led advances in the sharing of data with a view to
facilitating translation of research into innovations for human health. This change in scientific …

Fostering data sharing is a scientific and ethical imperative. Health gains can be achieved
more comprehensively and quickly by combining large, information-rich datasets from …

The social structures that govern data/sample release aim to safeguard the confidentiality
and privacy of cohort research participants (without whom there would be no data or …

Data from biomedical research are more broadly available to the research community today
than in the past. Technical developments, such as web-based databases, have played a …

Abstract The Wellcome Trust Sanger Institute has a strong reputation for prepublication data
sharing as a result of its policy of rapid release of genome sequence data and particularly …

The Global Alliance for Genomics and Health is marshaling expertise in biomedical
research and data sharing policy to propel bench-to-bedside translation of genomics in …

Data sharing is increasingly regarded as an ethical and scientific imperative that advances
knowledge and thereby respects the contributions of the participants. Because of this and …

Advances in technologies and biomedical informatics have expanded capacity to generate
and share biomedical data. With a lens on genomic data, we present a typology …

Background While genomic data sharing can facilitate important health research and
discovery benefits, these must be balanced against potential privacy risks and harms to …