Abstract The Global Alliance for Genomics and Health (GA4GH) proposes a data access
policy model—“registered access”—to increase and improve access to data requiring an …

We propose a standard model for a novel data access tier–registered access–to facilitate
access to data that cannot be published in open access archives owing to ethical and legal …

Facilitating the responsible access to genomic research data is an emerging ethical and
scientific imperative. Data Access Committees (DACs) assess the ethical footing and …

In setting up a data access policy to share controlled access data from the McGill
Epigenomics Mapping Centre (EMC), an International Human Epigenome Consortium …

This paper outlines the history behind open access principles and describes the
development of a managed access data-sharing process for the UK10K Project, currently …

The scientific community, research funders, and governments have repeatedly recognized
the importance of open access to genomic data for scientific research and medical progress …

Data sharing is increasingly regarded as an ethical and scientific imperative that advances
knowledge and thereby respects the contributions of the participants. Because of this and …

Sharing genomic research data through controlled‐access databases has increased in
recent years. Policymakers and funding organizations endorse genomic data sharing in …

Background Genetic databases are becoming increasingly common as a means of
determining the relationship between lifestyle, environmental exposures and genetic …

DNAdigest's mission is to investigate and address the issues hindering efficient and ethical
genomic data sharing in the human genomics research community. We conducted …