Genomic data sharing is becoming more important as scientists join forces across borders in
biomedical research for the benefit of patients and society. The EU's General Data …

Data sharing is increasingly regarded as an ethical and scientific imperative that advances
knowledge and thereby respects the contributions of the participants. Because of this and …

Fostering data sharing is a scientific and ethical imperative. Health gains can be achieved
more comprehensively and quickly by combining large, information-rich datasets from …

The evolution of genomic research and its integration into clinical practice, as they become
international—even global—endeavors, has brought us to a place where scientists and …

Background Governments, funding bodies, institutions, and publishers have developed a
number of strategies to encourage researchers to facilitate access to datasets. The rationale …

Abstract The Wellcome Trust Sanger Institute has a strong reputation for prepublication data
sharing as a result of its policy of rapid release of genome sequence data and particularly …

Introduction Effective data sharing does not occur in the UK despite being essential for the
delivery of high-quality genomic services to patients across clinical specialities and to …

The coming-into-force of the EU General Data Protection Regulation (GDPR) is a watershed
moment in the legal recognition of enforceable rights to informational self-determination. The …

The EU member states' healthcare and health-related research sectors are both
characterized by an emerging infrastructural coalescence on a national and European level …

The importance of genomic data sharing has long been recognized across a range of
contexts, from community resource projects to biomedical research seeking insights into …