The FAIR guiding principles for data stewardship: fair enough?

M Boeckhout, GA Zielhuis… - European journal of human …, 2018 - nature.com
The FAIR guiding principles for research data stewardship (findability, accessibility,
interoperability, and reusability) look set to become a cornerstone of research in the life …

International Charter of principles for sharing bio-specimens and data

D Mascalzoni, ES Dove, Y Rubinstein… - European Journal of …, 2015 - nature.com
There is a growing international agreement on the need to provide greater access to
research data and bio-specimen collections to optimize their long-term value and exploit …

Solidarity and equity: new ethical frameworks for genetic databases

R Chadwick, K Berg - Nature Reviews Genetics, 2001 - nature.com
Genetic database initiatives have given rise to considerable debate about their potential
harms and benefits. The question arises as to whether existing ethical frameworks are …

Responsible, practical genomic data sharing that accelerates research

JB Byrd, AC Greene, DV Prasad, X Jiang… - Nature Reviews …, 2020 - nature.com
Data sharing anchors reproducible science, but expectations and best practices are often
nebulous. Communities of funders, researchers and publishers continue to grapple with …

Exploring pathways to trust: a tribal perspective on data sharing

R James, R Tsosie, P Sahota, M Parker, D Dillard… - Genetics in …, 2014 - nature.com
The data-sharing policies of the National Institutes of Health aim to maximize public benefit
derived from genetic studies by increasing research efficiency and use of a pooled data …

Including all voices in international data-sharing governance

J Kaye, SF Terry, E Juengst, S Coy, JR Harris… - Human Genomics, 2018 - Springer
Background Governments, funding bodies, institutions, and publishers have developed a
number of strategies to encourage researchers to facilitate access to datasets. The rationale …

Framework for responsible sharing of genomic and health-related data

BM Knoppers - The HUGO journal, 2014 - Springer
1. Purpose The purpose of this Framework is to provide a principled and practical framework
for the responsible sharing of genomic and health-related data. Its primary goals are to: i …

A human rights approach to an international code of conduct for genomic and clinical data sharing

BM Knoppers, JR Harris, I Budin-Ljøsne, ES Dove - Human Genetics, 2014 - Springer
Fostering data sharing is a scientific and ethical imperative. Health gains can be achieved
more comprehensively and quickly by combining large, information-rich datasets from …

Addendum: The FAIR Guiding Principles for scientific data management and stewardship

MD Wilkinson, M Dumontier, I Jan Aalbersberg… - Scientific data, 2019 - nature.com
Addendum: The FAIR Guiding Principles for scientific data management and stewardship |
Scientific Data Skip to main content Thank you for visiting nature.com. You are using a browser …

Towards a data sharing Code of Conduct for international genomic research

BM Knoppers, JR Harris, AM Tassé, I Budin-Ljøsne… - Genome medicine, 2011 - Springer
Data sharing is increasingly regarded as an ethical and scientific imperative that advances
knowledge and thereby respects the contributions of the participants. Because of this and …