Frameworks for supporting patient and public involvement in research: systematic review and co‐design pilot

T Greenhalgh, L Hinton, T Finlay… - Health …, 2019 - Wiley Online Library
Background Numerous frameworks for supporting, evaluating and reporting patient and
public involvement in research exist. The literature is diverse and theoretically …

Using participatory implementation science to advance health equity

S Ramanadhan, R Alemán, CD Bradley… - Annual review of …, 2023 - annualreviews.org
Participatory approaches to implementation science (IS) offer an inclusive, collaborative,
and iterative perspective on implementing and sustaining evidence-based interventions …

Addressing ethical challenges in US-based HIV phylogenetic research

L Dawson, N Benbow, FE Fletcher… - The Journal of …, 2020 - academic.oup.com
In recent years, phylogenetic analysis of HIV sequence data has been used in research
studies to investigate transmission patterns between individuals and groups, including …

[HTML][HTML] ESOT Consensus Platform for Organ Transplantation: Setting the Stage for a Rigorous, Regularly Updated Development Process

U Cillo, A Weissenbacher, L Pengel… - Transplant …, 2022 - frontierspartnerships.org
The European Society for Organ Transplantation (ESOT) has created a platform for the
development of rigorous and regularly updated evidence based guidelines for clinical …

Co-designing health service evaluation tools that foreground first nation worldviews for better mental health and wellbeing outcomes

M Wright, AD Getta, AO Green, UC Kickett… - International journal of …, 2021 - mdpi.com
It is critical that health service evaluation frameworks include Aboriginal people and their
cultural worldviews from design to implementation. During a large participatory action …

Controversy and debate series on core outcome sets. paper 1: improving the generalizability and credibility of core outcome sets (COS) by a large and international …

A Chevance, VT Tran, P Ravaud - Journal of clinical epidemiology, 2020 - Elsevier
Core outcome sets (COSs) are agreed-on standardized sets of outcomes that should be
minimally measured in all trials of a given disease. To enhance the uptake of COSs in trials …

A scoping review to identify and describe the characteristics of theories, models and frameworks of health research partnerships

BJ Tittlemier, J Cooper, D Steliga, RL Woodgate… - Health research policy …, 2022 - Springer
Background Engaging users of health research, namely knowledge users, as partners in the
research process may to lead to evidence that is more relevant to the users. This may …

RADx-UP coordination and data collection: an infrastructure for COVID-19 testing disparities research

G Corbie, EM D'Agostino, S Knox… - … journal of public …, 2022 - ajph.aphapublications.org
The COVID-19 pandemic has further exposed structural racism, inequalities, and other forms
of systemic oppression that have limited opportunities for health equity and community …

Ethical challenges and lessons learned from qualitative research with low-income African American women living with HIV in the South

FE Fletcher, WS Rice, LA Ingram… - … of health care for the poor …, 2019 - muse.jhu.edu
African American women living with HIV (WLWH) in the US South encounter heightened
marginalization due to the complex intersections of race, gender, poverty, and HIV status …

Achieving racial representation in food allergy research: a modified Delphi study

LA Bilaver, I Galic, J Zaslavsky, B Anderson… - The Journal of Allergy …, 2023 - Elsevier
Background The overrepresentation of White participants in food allergy research
contributes to the development of research questions and interventions not driven by those …