Big picture initiatives in bleeding disorders

A Rauch, LA Valentino, K Mills, ML Witkop… - …, 2022 - Wiley Online Library
Introduction The inherited bleeding disorders (IBD) community has witnessed significant
therapeutic advances recently, yet important gaps persist, particularly for those with rare …

[HTML][HTML] A need to increase von Willebrand disease awareness: vwdtest. com–A global initiative to help address this gap

FF Corrales-Medina, AB Federici, A Srivastava… - Blood reviews, 2023 - Elsevier
Von Willebrand disease (VWD) is an inherited bleeding disorder caused by quantitative or
qualitative deficiencies in von Willebrand factor (VWF). People with VWD may experience …

Patient-centered care in von Willebrand disease: are we there yet?

GH Tang, J Thachil, M Bowman… - Expert Review of …, 2023 - Taylor & Francis
ABSTRACT Introduction Von Willebrand Disease is the most common inherited bleeding
disorder. Paradoxically, affected individuals are often misdiagnosed and experience …

[HTML][HTML] Hormonal therapies in females with blood disorders: thrombophilia, thrombosis, hemoglobinopathies, and anemias

MK Baldwin, BS Bannow, RP Rosovsky… - Research and Practice …, 2023 - Elsevier
There is widespread use of gonadal steroid hormone therapy for a variety of indications
throughout the reproductive and postreproductive lifespan. These therapies may have …

[HTML][HTML] Von Willebrand disease—specific aspects in women

F Eladly, W Miesbach - Hämostaseologie, 2022 - thieme-connect.com
Von Willebrand disease (VWD) is the most common inherited bleeding disorder, which
results from a deficiency or dysfunction of von Willebrand factor (VWF). The major symptoms …

Quality of life improvements in women with uterine fibroids treated with relugolix combination therapy during the LIBERTY long‐term extension study: a descriptive …

R Venturella, AS Lukes, R Wu… - … of Gynecology & …, 2024 - Wiley Online Library
Objective To investigate the effects of 52 weeks of treatment with relugolix combination
therapy (relugolix 40 mg, estradiol 1 mg, norethindrone acetate 0.5 mg) on symptoms of …

Clinical phenotype and laboratory characteristics of 93 patients with congenital fibrinogen disorders from unrelated 36 families

D Tian, J Liang, H Gao, X Xu, W Nie, M Yin… - Research and Practice …, 2024 - Elsevier
Abstract Background Congenital fibrinogen disorders (CFDs) are rare bleeding disorders
(RBDs) caused by mutations in 1 of the 3 fibrinogen genes (FGA, FGB, and FGG). Objectives …

The length of the sanitary napkins can be used as a handier index than pictorial blood loss assessment chart to predict the heavy menstrual bleeding

A Nagao, T Tokugawa, Y Matsuo… - Journal of Obstetrics …, 2023 - Wiley Online Library
Aim Many women with inherited bleeding disorders are not diagnosed because of a lack of
appropriate indicators. This study aimed to assess the predictability of the pictorial blood …

An expert consensus to define how higher standards of equitable care for von Willebrand disease can be achieved in the UK and Republic of Ireland

M Laffan, G Benson, C Farrelly, K Gomez… - …, 2023 - Wiley Online Library
Abstract Introduction Von Willebrand Disease (VWD) is the most common inherited bleeding
disorder. However, recognition of the disease by both the public and healthcare …

Management of patients with elevated Self-BAT scores or other bleeding symptoms: Updated overview for primary care practitioners

K Yeung, C McGrath, K Howse, P James - Canadian Family Physician, 2022 - cfp.ca
Objective To provide recommendations for management of patients presenting with elevated
self-administered bleeding assessment tool (Self-BAT) scores or other bleeding symptoms …