We define the minimal important change (MIC) as a threshold for a minimal within-person
change over time above which patients perceive themselves importantly changed. There is …

The long delay before genomic technologies become available in low-and middle-income
countries is a concern from both scientific and ethical standpoints. Polygenic risk scores …

OptiBreech collaborative care is a multi-disciplinary care pathway for breech presentation at
term, with continuity from a breech specialist midwife, including where chosen, for vaginal …

There is tremendous need for brief and supported, non-commercial youth-and caregiver-
report questionnaires of youth anxiety. The pediatric and parent proxy short forms of the …

Objectives Issues arising from a lack of outcome standardisation in health research may be
addressed by the use of core outcome sets (COS), which represent agreed-upon …

Objectives We aimed to compare measurement properties of the 5-level version of EQ-5D
(EQ-5D-5L) and 2 Patient-Reported Outcomes Measurement Information System (PROMIS) …

Objective: The objective of this project was to develop a set of patient-reported outcome
measures for adolescents and adults who meet criteria for a psychotic disorder. Methods: A …

Background Patient-reported outcome measures (PROMs) can provide valuable insights on
the impact of a disease or treatment on a patient's health-related quality of life. In …

Background Amidst the growing number of patient-reported outcome (PRO) measures of
fatigue being used in multiple sclerosis (MS) clinical trials and clinics, evidence-based …

Background The recently announced long-term plan for the NHS is based on a model of
person-centred care, which relies on the sustained engagement of patients, shared decision …