Contested disability: sickle cell disease

S Srikanthan - Health & Social Work, 2023 - academic.oup.com
The world's first “molecular disease,” sickle cell disease (SCD) has captivated the medical
community's attention as a multisystem blood disorder linked to abnormalities in one …

The indignities of shielding during the COVID-19 pandemic for people with sickle cell disorders: an interpretative phenomenological analysis

M Berghs, F Horne, S Yates, R Kemp… - Frontiers in …, 2024 - frontiersin.org
This article seeks to understand the first-hand experiences of people with sickle cell, a
recessively inherited blood disorder, who were identified as clinically extremely vulnerable …

Associações entre aspectos psicossociais e agravos odontológicos em pessoas com doença Falciforme no Brasil: uma revisão de literatura

MZ Scheuermann, ML Bartholomei-Santos - Revista da Faculdade de …, 2024 - seer.upf.br
Objetivos: sintetizar dados relativos à prevalência da Doença Falciforme (DF) no Brasil;
identificar como os aspectos psicossociais impactam na qualidade de vida (QV) desses …

Social Determinants of Severity in Sickle Cell Disease

M Berghs, B Ebenso, B Ola - Sickle Cell Disease in Sub-Saharan …, 2024 - taylorfrancis.com
This chapter argues that biological and genetic factors, as well as good medical care, can
impact on sickle cell disorders (SCD) and how the condition is experienced. We adopted a …

Unmasking Acute Chest Syndrome: Understanding the Role of Nonpharmacologic Interventions on Children with Sickle Cell Disease During the COVID-19 Pandemic

SM Willen, RT Cohen - Chest, 2024 - journal.chestnet.org
Sickle cell disease (SCD) is a common, life-limiting genetic hemoglobinopathy that affects
300,000 live births per year worldwide. Acute chest syndrome (ACS) can be a severe and …

Social Science Research and Sickle Cell Disorders

M Berghs, B Ebenso - Handbook of Social Sciences and Global Public …, 2023 - Springer
Social science research on sickle cell disorders (SCD), recessively inherited blood
conditions, have come of age in the last twenty years from being invisible, neglected …

Older age and poor health outcomes within Black communities: an assessment of risk during the COVID-19 pandemic

A Banner - 2024 - thesis.lakeheadu.ca
To assess the impact of the COVID-19 pandemic on older adults within Black communities in
Canada, the study described self-reported health ratings before and during the pandemic …

[PDF][PDF] Embracing Motion, Embodying Freedom: A Dance/Movement Therapy Approach for Adolescents with Chronic Pain.

VR Haigh, VR Haigh - 2023 - researchdiscovery.drexel.edu
Embracing Motion, Embodying Freedom: A Dance/Movement Therapy Approach for
Adolescents with Chronic Pain. Page 1 Embracing Motion, Embodying Freedom: A Dance/Movement …