[HTML][HTML] Informed consent in biomedical research
Informed consent is the result of tumultuous events in both the clinical and research arenas
over the last 100 years. Throughout this time, the notion of informed consent has shifted …
over the last 100 years. Throughout this time, the notion of informed consent has shifted …
Reducing bias and improving transparency in medical research: a critical overview of the problems, progress and suggested next steps
In recent years there has been increasing awareness of problems that have undermined
trust in medical research. This review outlines some of the most important issues including …
trust in medical research. This review outlines some of the most important issues including …
GA4GH: International policies and standards for data sharing across genomic research and healthcare
Summary The Global Alliance for Genomics and Health (GA4GH) aims to accelerate
biomedical advances by enabling the responsible sharing of clinical and genomic data …
biomedical advances by enabling the responsible sharing of clinical and genomic data …
World‐Wide FINGERS Network: a global approach to risk reduction and prevention of dementia
M Kivipelto, F Mangialasche, HM Snyder… - Alzheimer's & …, 2020 - Wiley Online Library
Reducing the risk of dementia can halt the worldwide increase of affected people. The
multifactorial and heterogeneous nature of late‐onset dementia, including Alzheimer's …
multifactorial and heterogeneous nature of late‐onset dementia, including Alzheimer's …
[HTML][HTML] FAIR data sharing: the roles of common data elements and harmonization
RD Kush, D Warzel, MA Kush, A Sherman… - Journal of biomedical …, 2020 - Elsevier
The value of robust and responsible data sharing in clinical research and healthcare is
recognized by patients, patient advocacy groups, researchers, journal editors, and the …
recognized by patients, patient advocacy groups, researchers, journal editors, and the …
FAIR, ethical, and coordinated data sharing for COVID-19 response: a scoping review and cross-sectional survey of COVID-19 data sharing platforms and registries
L Maxwell, P Shreedhar, D Dauga… - The Lancet Digital …, 2023 - thelancet.com
Data sharing is central to the rapid translation of research into advances in clinical medicine
and public health practice. In the context of COVID-19, there has been a rush to share data …
and public health practice. In the context of COVID-19, there has been a rush to share data …
Minimally invasive glaucoma surgery: a critical appraisal of the literature
DJ Mathew, YM Buys - Annual Review of Vision Science, 2020 - annualreviews.org
Micro-or minimally invasive glaucoma surgeries (MIGS) have been the latest addition to the
glaucoma surgical treatment paradigm. This term refers not to a single surgery, but rather to …
glaucoma surgical treatment paradigm. This term refers not to a single surgery, but rather to …
Applications of artificial intelligence and machine learning in respiratory medicine
The past 5 years have seen an explosion of interest in the use of artificial intelligence (AI)
and machine learning techniques in medicine. This has been driven by the development of …
and machine learning techniques in medicine. This has been driven by the development of …
The “A” of FAIR–as open as possible, as closed as necessary
A Landi, M Thompson, V Giannuzzi, F Bonifazi… - Data …, 2020 - direct.mit.edu
In order to provide responsible access to health data by reconciling benefits of data sharing
with privacy rights and ethical and regulatory requirements, Findable, Accessible …
with privacy rights and ethical and regulatory requirements, Findable, Accessible …
Pediatric cancer data commons: Federating and democratizing data for childhood cancer research
The international pediatric oncology community has a long history of research collaboration.
In the United States, the 2019 launch of the Children's Cancer Data Initiative puts the focus …
In the United States, the 2019 launch of the Children's Cancer Data Initiative puts the focus …