[HTML][HTML] Sharing health data for better outcomes on PatientsLikeMe

P Wicks, M Massagli, J Frost, C Brownstein… - Journal of medical …, 2010 - jmir.org
Background: PatientsLikeMe is an online quantitative personal research platform for patients
with life-changing illnesses to share their experience using patient-reported outcomes, find …

Frail patients are at increased risk for mortality and prolonged institutional care after cardiac surgery

DH Lee, KJ Buth, BJ Martin, AM Yip, GM Hirsch - Circulation, 2010 - Am Heart Assoc
Background—Frailty is an emerging concept in medicine yet to be explored as a risk factor
in cardiac surgery. Where elderly patients are increasingly referred for cardiac surgery, the …

Informed consent for clinical treatment

DE Hall, AV Prochazka, AS Fink - Cmaj, 2012 - Can Med Assoc
The theory behind informed consent presumes that patients will use the information
disclosed in autonomous and rational ways. Unfortunately, this presumption is not always …

Vital directions for health and health care: priorities from a National Academy of Medicine initiative

VJ Dzau, MB McClellan, JM McGinnis, SP Burke… - Jama, 2017 - jamanetwork.com
Importance Recent discussion has focused on questions related to the repeal and
replacement of portions of the Affordable Care Act (ACA). However, issues central to the …

[PDF][PDF] Coordinating care-a perilous journey through the health care system

T Bodenheimer - New England Journal of Medicine, 2008 - Citeseer
For 45 years, my uncle was a general practitioner. Except for rare few-day vacations, he was
on call 24/7/365 during 45 years. For most of his patients most of the time, care coordination …

Clinical empathy as emotional labor in the patient-physician relationship

EB Larson, X Yao - Jama, 2005 - jamanetwork.com
Empathy should characterize all health care professions. Despite advancement in medical
technology, the healing relationship between physicians and patients remains essential to …

[HTML][HTML] Developing CollaboRATE: a fast and frugal patient-reported measure of shared decision making in clinical encounters

G Elwyn, PJ Barr, SW Grande, R Thompson… - Patient education and …, 2013 - Elsevier
Objective Measuring the process of shared decision making is a challenge, which
constitutes a barrier to research and implementation. The aim of the study was to report the …

Patients' and physicians' attitudes regarding the disclosure of medical errors

TH Gallagher, AD Waterman, AG Ebers, VJ Fraser… - Jama, 2003 - jamanetwork.com
Context Despite the best efforts of health care practitioners, medical errors are inevitable.
Disclosure of errors to patients is desired by patients and recommended by ethicists and …

Shared decision making: physicians' preferred role, usual role and their perception of its key components

EM Driever, AM Stiggelbout, PLP Brand - Patient education and counseling, 2020 - Elsevier
Objective To investigate physicians' preferred and usual roles in decision making in medical
consultations, and their perception of shared decision making (SDM). Methods A cross …

The quality of instruments to assess the process of shared decision making: a systematic review

FR Gärtner, H Bomhof-Roordink, IP Smith, I Scholl… - PloS one, 2018 - journals.plos.org
Objective To inventory instruments assessing the process of shared decision making and
appraise their measurement quality, taking into account the methodological quality of their …